What can PwME hope for in 2023?

[Sasha]

New research starting, research results, medicopolitical changes, etc....

Discuss!

 

[Suffolkres]

Truth is, with NHS England at the helm, not a lot!
The odd ICS (like Suffolk (and NE Essex being dragged to agree) identifying ME within their long term 5 year plan 2023 -2028).....?????
How many of the new shiny 42 ICS nationwide have done this.
Please pray do tell me?

 

[RedFox]

Ever the optimist, I find things to be hopeful for:
DecodeME!
Results from NIH RECOVER's treatment trials
Progress on the long Covid drug pipeline in general (BC-007, CT-38, gaunfacine, etc.)
The OMF's treatment trials (presumably preliminary)

I'm expecting strong results from Decode. 20k people? We're gonna get some smoking guns.

 

[InitialConditions]

I don't think we're gonna get results from DecodeME this year — not after recent delays. Paper writing usually takes at least 6 months. Probably spring 2024 IMO.

 

[Kalliope]

I'm rather curious on Avindra Nath's study based on the NIH in-house testing of ME-patients, including Brian Vastag. I believe it is to be published soon?

 

[Sasha]

When do we expect results from the NIH's study that Brian Vastag was involved with?

 

[Sasha]

Great minds, @Kalliope !

 

[NelliePledge]

I'm rather curious on Avindra Nath's study based on the NIH in-house testing of ME-patients, including Brian Vastag. I believe it is to be published soon?

The researchers seem to have a very elongated definition of soon

 

[NelliePledge]

I would hope for less hyping of early and not significant findings.