[UK] Guardian: 'A cruel penalty’: disabled people face lower benefit payments if conditions not deemed lifelong - mentions ME

Why do they add more stress for persons with disabilities?

It should be based on the functional impact of a severe and prolonged impairment, rather than just a medical diagnosis. A qualified practitioner must certify that the impairment restricts basic daily living activities "all or almost all the time" (at least 90% of the time.

It took the Canadian Revenue Agency 35 years to determine that the nature of my disability was permanent. I had 4 separate MD's fill out my forms over that time period. Unbelievable.
 
It should be based on the functional impact of a severe and prolonged impairment, rather than just a medical diagnosis.

It is based on that, really; after all, a diagnosis of cancer can mean anything from a devastating terminal illness to a small skin lesion that can be removed in minutes.

But it is very worrying. Quite a number of people who hadn't been invited to migrate from ESA to Universal Credit by late last year decided to start the process themselves, since if they managed it before the cutoff date, they wouldn't be affected by the rule change. But that doesn't help new claimants, who could be getting less support than some existing ones even though they have greater impairment.

One thing Britain's good at, though, is welfare advocacy. It's first class and available at very low cost. Advocates always find at least some opportunities within the law, and helpful case law also develops via decisions handed down by judges.

Many of the welfare changes that governments have brought in over the last 30 years reflect this. Each set of changes is aimed at reducing the number of people who qualify, but the number tends to increase over time as people find ways to make the law work for them—and because their impairments are genuine and substantial, tribunals often find in their favour. Judges sometimes look more closely than DWP assessors, and also consider what is a reasonable interpretation of the law.

It's a kind of elaborate dance, but even though claimants' chances often improve, a lot of sick and disabled people get trampled underfoot along the way. And of course you have a better chance if you're well educated, not mentally fragile, and have people who can offer you practical support.
 
It’s just the same as the PIP, rehashing things to save money whilst spinning that it’s “helping” the disabled.

As usual most people exist in the grey area that allows individuals to be assessed by an assessor, who makes some kind of decision in isolation. Then it appears when lots of very disabled people talk online that assessors are being obtuse and looking for weird reasons not to make awards.
 
ME/CFS is really problematic in this regard. The wrong prognosis information has taught to doctors and the DWP, both think its a temporary short lived condition when its clearly overwhelmingly a lifelong, life expectancy reducing disease. The disease can vary over time and week to week even which makes severe and lifelong extremely difficult to meet. This feels very targeted at the waxing and waning diseases like ME/CFS and Long Covid to take away benefits.

I kind of wish I was wrong that governments around the world would pull support. Rather than fund research and help the disabled from the pandemic instead they have concluded disability will become too expensive due to the continuing rise and so they are ripping away the funding. Its really obnoxious having ignored the pandemics impact to then abandon the people harmed by it, many of them doctors and nurses who were put unnecessarily in harms way with lacking PPE.

This is all very concerning, many of us can barely survive as is.
 
It’s exactly like ill health retirement criteria, there’s no known treatment or cure and it’s not terminal therefore it cant be “known” that you will never recover.

Would it really be so difficult to do a longitudinal study on pwME? Just survey loads of people who have had it for over 10 or 15 years to see how many declined?
 
In Canada apparently, our disability just disappears after age 65 so we no longer receive the Canada Disability Benefit that recently rolled out.
 
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