Twin with ME/CFS wants to be a research subject

If we have some gene leads established then twin studies are potentially very useful. I am not aware of anyone collecting twins at present. The King's College twin unit might be the people to collect data since they have a lot of experience with twin studies. There is a female rheumatologist in the unit called Frances something who was present at one of the planning advisory meetings for DecodeME.
 
Jaybee00 said:


I’m 22 years old. I’ve been completely bedridden for almost 2 years now with MECFS. It was triggered by a stomach bug.I have a TWIN brother who had the same stomach bug a day earlier but is perfectly healthy. Any interest from researchers?
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Damn l can’t message him on twitter without him following me or paying Elon for twitter premium(not doing that).

Looks like he got some leads, I’d love to get in contact with him. Hopefully he sees this thread somehow

Edit: @Jaybee00 are you the twitter OP? Aka Jacob, or just posting for him
 
Utsikt said:
Twins come from different eggs being fertilised at the same time by different sperm, so they are not any more identical than regular siblings.

Identical twins come from one fertilised egg that split into two embryos so they have nearly identical dna.
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I think most ppl think of identical when saying “twins” in conversation. I’ve always referred to the two egg as fraternal twins.
 
Sasha said:
I did, that's why I was confused.
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Interesting. So some people would never call a brother and sister born at the same time twins and 2 brothers and a sister born at the same time wouldn't be called triplets and people of different gender would never be called quadruplets and so forth according to the language some people use?
 
EndME said:
Interesting. So some people would never call a brother and sister born at the same time twins and 2 brothers and a sister born at the same time wouldn't be called triplets and people of different gender would never be called quadruplets and so forth according to the language some people use?
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I don't think gender comes into it - I just tend to forget about the existence of non-identical twins, and did so particularly in this context of someone offering themselves up for twin research because if they weren't identical, why would they be interesting to research any more than ordinary siblings...
 
Sasha said:
I don't think gender comes into it - I just tend to forget about the existence of non-identical twins, and did so particularly in this context of someone offering themselves up for twin research because if they weren't identical, why would they be interesting to research any more than ordinary siblings...
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Ah ok I understand your thought process. You assumed he must be an identical twin because he assumes he's an interesting study subject. I thought you only refered to twins as being twins when they are genetically identically so I was wandering about the obvious things such a different sex twins (or more), something most people will have come across in their lives, which per definition cannot be identical.
 
I have always used 'twins' for both types, identical and non-identical or monoygotic and dizygotic.
He is potentially of interest whichever in that studies often make use of differences in concordance between the two types. If only a small number of pairs are available then dizygotics would probably be more interesting to see which uncommon genes might show up in only affected individuals.
 
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