John Mac
Senior Member (Voting Rights)
Let’s make this the decade we finally develop treatments for this condition, writes Sonya Chowdhury
2025: A breakthrough year for ME, but we must go further
Too many people – including, devastatingly, many medical professionals - have dismissed it as ‘all in the mind’. This characterisation is hurtful and damaging to those who experience the reality of the condition – either living with it themselves or caring for someone who is.
ME is a profoundly debilitating, chronic illness that affects multiple systems within the body. There are an estimated 1.35 million people in the UK with ME or ME-like symptoms, including post-exertional malaise: the hallmark symptom of ME.
Over the past three years, Action for ME partnered with the University of Edinburgh on the DecodeME study – the largest of its kind ever undertaken. It identified eight genetic signals where people with ME differ from those without. Building on that, PrecisionLife – in partnership with Action for ME and the University of Edinburgh – identified over 250 genes that may increase the risk of developing ME. LOCOME, the study in question, also found some overlap with long Covid biology, with 76 genes linked to both conditions.
This could be groundbreaking.
www.lbc.co.uk
2025: A breakthrough year for ME, but we must go further
Too many people – including, devastatingly, many medical professionals - have dismissed it as ‘all in the mind’. This characterisation is hurtful and damaging to those who experience the reality of the condition – either living with it themselves or caring for someone who is.
ME is a profoundly debilitating, chronic illness that affects multiple systems within the body. There are an estimated 1.35 million people in the UK with ME or ME-like symptoms, including post-exertional malaise: the hallmark symptom of ME.
Over the past three years, Action for ME partnered with the University of Edinburgh on the DecodeME study – the largest of its kind ever undertaken. It identified eight genetic signals where people with ME differ from those without. Building on that, PrecisionLife – in partnership with Action for ME and the University of Edinburgh – identified over 250 genes that may increase the risk of developing ME. LOCOME, the study in question, also found some overlap with long Covid biology, with 76 genes linked to both conditions.
This could be groundbreaking.
Treatment for chronic fatigue has turned a corner - the UK must not leave patients waiting | LBC
Let’s make this the decade we finally develop treatments for this condition, writes Sonya Chowdhury
www.lbc.co.uk
