Ash
Senior Member (Voting Rights)
People with meningitis get told this too. With devastating and deadly consequences.
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New Forum Software Installed (Still a few issues but reopening the forum) More details.
#ThereForME campaign / Building an NHS that’s there for Long Covid and ME
- Thread starter Andy
- Start date
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- Tags
- bbc chew-graham long covid
Wyva
Senior Member (Voting Rights)
Posts moved from
United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media
______________
The Times: Patients with severe ME at risk of starvation, doctors say
I can't read this but probably someone else has access.
United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media
______________
The Times: Patients with severe ME at risk of starvation, doctors say
Nearly 200 health professionals have written to the health secretary saying that patients with the illness are being left to ‘languish behind closed doors’
I can't read this but probably someone else has access.
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Adam pwme
Senior Member (Voting Rights)
here’s the Full article
https://archive.is/2024.09.16-23473.../article/1d897c33-9d0d-45f2-8ecd-581eee3652fb
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Nightsong
Senior Member (Voting Rights)
Some BBC coverage of this campaign from today as well:
https://www.bbc.co.uk/news/articles/c9dyyn834lwo.amp
A share link for the Times story:
https://www.thetimes.com/article/1d...b?shareToken=3d2f96a919796bf1125905e1ca4dd47f
And the letter they sent:
https://www.thereforme.uk/p/9ee430f4-53b1-4ab5-9e1d-7f2ba3483813?updated=2024-09-16T19:50:57.383Z&free_preview=false
https://www.bbc.co.uk/news/articles/c9dyyn834lwo.amp
A share link for the Times story:
https://www.thetimes.com/article/1d...b?shareToken=3d2f96a919796bf1125905e1ca4dd47f
And the letter they sent:
https://www.thereforme.uk/p/9ee430f4-53b1-4ab5-9e1d-7f2ba3483813?updated=2024-09-16T19:50:57.383Z&free_preview=false
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Arnie Pye
Senior Member (Voting Rights)
The thereforme link and text in the previous reply should be copied and kept somewhere safe so people in the UK looking for ME help from the NHS might find someone who believes in ME patients. It's a long list with names from all over the country.
https://www.thereforme.uk/p/9ee430f4-53b1-4ab5-9e1d-7f2ba3483813?updated=2024-09-16T19:50:57.383Z&free_preview=false
I'm not sure if such links exist for ever, or if they become unavailable after a couple of weeks.
https://www.thereforme.uk/p/9ee430f4-53b1-4ab5-9e1d-7f2ba3483813?updated=2024-09-16T19:50:57.383Z&free_preview=false
I'm not sure if such links exist for ever, or if they become unavailable after a couple of weeks.
Quite a few recognisable names in the list, a number of whom we know have ME/CFS from their previous publications, interviews, social media posts. (I'm still surprised more aren't on this forum.)
Sly Saint
Senior Member (Voting Rights)
One jumped out:
"Anna Gregorowki - Consultant Nurse and BACME Chair, London, University College London Hospital".
To my mind the list is another indication of how irrelevant BACME are now; certainly not deserving of being a primary source of information about pwME and ME.
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Good to see so many in support. A few surprises given their previous (current?) attitudes towards ME/CFS.
If anyone can encourage more clinicians to join us, please do.
Dr Binita Kane - Consultant Respiratory Physician, special interest in ME/ Long COVID, Manchester
Professor Carolyn Chew-Graham OBE - GP Principal and Professor of General Practice Research, Manchester
Dr Anna Porter - NHS GP, North Central London
Dr David Shakespeare - Consultant in Neurological Rehabilitation Medicine, Lancashire, Royal Preston Hospital
Dr Deepak Ravindran - Consultant NHS Pain Medicine, specialist interest in Long COVID, Berkshire
Dr Hollie Francis - GP Partner, Greater Manchester
Professor Amitava Banerjee - Consultant Cardiologist and Professor of Clinical Data Science, London
Dr Michelle Moore - GP Partner, Greater Manchester
Dr Cilla Rosen - GP with extended role in Long Covid, Hampshire
Professor Melvin Lobo - Cardiovascular Physician, Specialist in hypertension and PoTs, London, London Bridge Hospital
Dr Melissa Sargaison - Specialist Physician, Clinical Lead ME/CFS & Fibromyalgia Service, London, Royal London Hospital for Integrated Medicine
Dr Sarah Mason-Whitfield- GP, special interest in Emergency Medicine, London
Dr Helen Miles - GP, Oxfordshire
Professor Sarah Tyson - Physiotherapist and Honorary Professor of Rehabilitation, Manchester
Dr Asad Khan - Consultant Respiratory Physician, Manchester
Dr Ben Marsh - Consultant Neurodisability Paediatrician (retired), Exeter
Dr Abbas Khushnood - Consultant Paediatric Cardiologist, special interest in Long COVID, Newcastle
Dr Rebecca Goody - Consultant Clinical Oncologist, Leeds
Robin McNelis - Clinical Physiotherapist, special interest in Long COVID, Epping Forest
Dr Ben Sinclair - GP and Long Covid Doctor, London
Dr Clare Rayner - Consultant Physician in Occupational Medicine, Society of Occupational Medicine Long Term Illnesses Taskforce, Greater Manchester
Dr William Weir - Consultant in Infectious Disease, special interest in ME, London
Dr Claire Taylor - GP, special interest in Long Covid/ME, Perth, Scotland
Dr Rebekah Holmes - GP, Manchester, Northenden Group Practice
Dr Helen Salisbury - GP, Oxford
Sheryl Randhawa - Registered Nurse. Community Mental Health Nurse, London, Mother/Carer of Hannah who died of severe ME in 2022
Michael Lauchlan - Emergency Care Assistant, East Midlands
Amy Urry - Family and Systemic Psychotherapist, Exeter
Dr Rebecca Williams - GP Registrar with specialist interest in Paediatrics, training on hold due to ill health, West Yorkshire
Dr Rebecca Hall - GP, special interest in ME/Long Covid, Somerset
Dr Linn Järte - Specialist Registrar in anaesthetics, Wales
Julie Taylor - Nurse, special interest in Long Covid, Hull
Angela Tillen - Clinical Phlebotomist, supporting care of community patients with ME, Derby
Edd Tillen - Clinical Phlebotomist, supporting care of community patients with ME, Derby
Dr Clarke Gostelow - Junior Doctor
Dr Nicola Clague-Baker - Physiotherapist and Lecturer with special interest in ME, Liverpool, University of Liverpool, Physios For ME
Dr Michelle Bull - Physiotherapist, special interest in ME, Surrey, Physios For ME
Karen Leslie - Physiotherapist, special interest in ME, Merseyside, Physios For ME
Dr Charles Shepherd - Honorary Medical Advisor to ME Association
Dr Yasmin Levene - Histopathologist, London
Claire Appleton - Paramedic, Harrogate
Dr Eleanor Balmer - Consultant Paediatrician, Manchester
Carla Golding - Registered Nurse and Clinical Governance Advisor, Staffordshire
Aileen Mulligan - Registered Nurse, Belfast
Rachel Potter - Staff Nurse
Mandy Jones - Midwife, East Cheshire
Lorraine Horobin - Registered Nurse, Corporate Clinical Governance Facilitator, Staffordshire
Dr Nigel Speight - Paediatrician, special interest in ME, Durham
Dr Mark Fabrowski - NHS GP, Sussex, Medical Advisor to Long Covid Foundation
Dr Robin Kerr - GP, Scotland, Action For ME
Dr Katherine Wildon - GP, North West
Dr Joanne Murray - Consultant Clinical Psychologist, Manchester
Sarah Benjamins - Nutritionist, Manchester
Claire Sehinson - Functional Medicine Practitioner, Surrey
Amanda Dench - Paediatric Diabetes Nurse Specialist, East England, East of England Trust
Dr Stephanie de Giorgio - GP, East Kent
Mihai Mihai - Registered Nurse, Exetter
Dr Rageshri Dhairyawan - Consultant in Sexual Health, London
Dr Moira Phillips - Consultant Clinical Psychologist, Glasgow
Matthew Strang - Orthopaedic Surgeon, Bristol
Dr Kate Christie - GP, Surrey
Dr Emma Rivers - GP, Wetherby
Dr Azima Hussain - GP West Yorkshire
Dr Sakander Mahmud - Functional Disability Assessor (DWP), former GP registrar, West Yorkshire
Dr Alexis Gilber - Consultant in Health Protection, Leeds, UKHSA
Dr Sherena Nair - Consultant Elderly Medicine, Leeds, Leeds Teaching Hospitals NHS Trust
Dr Laura Graystone - GP Registrar, North Yorkshire
Dr Pia-Sophie Wool - GP, special interest in Paediatrics, Worcestershire
Dr Rachel Duncan - GP, special interest in Dementia, Sussex
Dr Johanna Theron - Clinical Lead Long Covid, Kent, Kent and Medway ICB
Kerry Davies - Registered Nurse, Cumbria
Dr Susie Harris - Emergency Care Registrar, Wirral
Dr Paul Smith - Consultant Physician, Lancaster
Dr Fayyaz Chaudhri - Community Dermatologist, North Cumbria
Dr Clare McNulty - Consultant Anaesthetist, Scotland
Sharon Garton - Registered Nurse, Derby, University Hospitals of Derby and Burton NHS Foundation Trust
Angela Marsden - Advanced Nurse Practitioner, East Sussex, Supporting Healthcare Heroes
Dr Alison Twycross - Nursing Professor and Deputy Dean (retired), Honorary Associate, Professor, Aylesbury, Supporting Healthcare Heroes, University of Birmingham
Dr Vikki McKeever - GP, special interest in ME/CFS, Leeds and York
Dr Elke Hausmann - GP, Derby
Amy Warbuton - Advanced Clinical Practitioner for Diabetes and Endocrinology, Lancaster, Royal Lancaster Infirmary
Dr Badia Ahmed - Histopathology Speciality Trainee Doctor, London
Dr Sheena Rakhra - GP, London
Gill Armstrong - Nurse Manager (retired), London
Professor Lesley Kavi - GP (retired), Visiting Professor, Warwickshire, Trustee and Chairperson of PoTs UK
Dr Rachel Reaveley - Rehabilitation Consultant, North East
Dr Anam Ahmed - GP and LTFT Obs and Gyne speciality training registrar, South Yorkshire
Dr Clare Rollason - GP, Urgent Care, Lancaster
Dr Andrew Blease - GP, East Kent
Sophie Lewthwaite - Registered Nurse, Cumbria
Deborah Singleton - Nurse specialist Long Covid, Manchester
Dr Yasmin Razak -NHS GP & Educator, London, Golborne Medical Centre
Dr Hannah Georgious - GP, Cheshire
Dr Paulette Ah-Chung - GP (Retired), Essex
Dr Gemma Banham - Consultant Renal Medicine and General Internal Medicine, West Midlands
Dr Nina Muirhead - Consultant Dermatologist, London
Dr Sarah Glynne - GP and Menopause Specialist, London, The Portland Hospital
Dr Paul Glynne - Consultant Physician, special interest in Long COVID, London, ULCH
Dr Ian Barros D'Sa - Consultant Radiologist, Birmingham
Dr Shaun Qureshi - Palliative Medicine Physician, Oxford
Dr Helen Smith - GP, Bedfordshire
Patricia Temple - Staff Nurse NHS
Dr Gareth Price - GP Partner, West Yorkshire
Dr Adelaide Lippold - GP, North Yorkshire
Clare Westwood - Advanced Nurse Practitioner, West Yorkshire, Huddersfield Royal Infirmary
Katie Wade - Advanced Clinical Practitioner, Paediatrics, West Yorkshire, Calderdale Royal Hospital
Leanne Spender - Midwife, North Yorkshire, Harrogate Royal Hospital
Dr Natalie Winfield - GP, Leeds
Ellen Dedus - Children's Community Nurse, West Suffolk, West Suffolk Foundation Trust
Kate MacDougall - Physiotherapist, Bedford
Sally Jennings - Palliative Care Physiotherapist (Retired), Leicester
Dr Timothy Jennings - GP (Retired), Leicestershire
Dr Julia Ward - GP, Dundee
Dr Eleanor Drager - Consultant in Genitourinary Medicine, London
Dr Cara Strachan - GP Locum, East Lothian
Dr Salina Jain-Parmar - GP, North Leeds
Dr Julie McDonald - Consultant Anaesthetist, Aberdeen, Aberdeen Royal Infirmary
Dr Calum McDonald - Consultant Anaesthetist, Aberdeen, Aberdeen Royal Infirmary
Dr Chia Liang - Consultant Geriatrician, London
Dr Rachel Ali - GP, Plymouth
Dr Sara Thompson - GP, Hertfordshire
Dr Amy Small - GP, Sheffield
Dr Catherine Steven - GP Partner, North London
Dr Lakhveer Manku - Consultant Physician, Manchester, Northern Care Alliance
Dr Mary-Ann Bentham - Consultant Paediatric Anaesthetist (Locum), Manchester, Manchester Children's Hospital
Dr Susannah Thompson - GP, North East
Dr Kul Bushan - Consultant Psychiatrist, London
Dr Anna Wylie - GP, Cambridgeshire
Dr Avril Washington - Consultant Paediatrician, London
Alice Martin - Midwife, Suffolk
Dr Angela Stevens-King - GP Partner, Cambridgeshire
Dr Aisha Sarwar - GP, Manchester
Karen Donaldson - Respiratory ACP, Lancashire
Anna Gregorowki - Consultant Nurse and BACME Chair, London, University College London Hospital
Dr Richard Tozer - Consultant Paediatrician and Local lead for ME/CFS, Devon
Dr Kelly Fearnley - Foundation Doctor, Bradford, Bradford Royal Infirmary
Maria Esslinger-Raven - Midwife, Lancashire
Dr Brian Holloway - Consultant Radiologist, London
Dr Wolfgang Water - GP, Bristol
Dr Sarah Jenkins - Consultant Neuroradiologist, Glasgow, NHS Greater Glasgow & Clyde
Dr Mary Zadik - GP, Greater Manchester
Dr Sarah Pocknell - GP (medically retired), London
Jonathon Dunn - Family and Systemic Psychotherapist, West Devon
Debora Tudge - Specialist Public Health Practitioner, Derbyshire
Emma Brown - Specialist Nurse, Cumbria, Dismissed from NHS on grounds of ill health, due to Long Covid
Professor Louise Cummings - Professor of Clinical Linguistics, York, St Johns University, UK
Rachel Jessey - Long Covid Nutritionist, Hampshire
Jessica Wainman-Lefley - Clinical Psychologist, Glasgow
Marina Townend - Specialist Occupational Therapist, Team Lead on ME/CFS and Post-Covid Syndrome services, Malvern Community Hospital
Dr Jonathan Fluxman - GP (retired), London
Dr Rachael Fear - SPT4 Obstetrics and Gynaecology
Sue Luscombe - Registered Dietician, Bedfordshire, Honorary Dietary Adviser ME Association
May Nisbet - Midwife (retired), Scotland, Aryshire and Arran NHS Trust
Dr Sarah Gawthorpe - GP with Special Interest in Dermatology, Southampton
David Martin - Clinical Psychologist, Suffolk
Dr Helen Day - Consultant GP, Yeovil, Ryalls Park Medical Centre
Dr Joanna Kirkcaldy - GP, Devon
Dr Chantal Meystre - NHS Emeritus Palliative Medicine, West Midlands
Dr Sophie Carpinteiro - GP and Genito-urinary Medicine Speciality Doctor, Brighton
Dr Sarah Jordan - Consultant in Acute Medicine and Gastroenterology, Darlington
Dr Alice Poskett - Obstetrics and Gynaecology, West Midlands
Mrs Amy Pearson - Consultant ENT Surgeon, Hull
Dr Sarah Loveridge - Surgical registrar (retired), Essex
Dr Jennifer Gibb - FY2 Doctor, Severn Deanery
Dr Christopher Gibb - GP, North Devon
Dr Rebecca Steed - GP, Nottingham
Dr Francesca Farmer - GP, London
Dr Sammy Syed - GP, Manchester
Dr Sharon Taylor - Psychiatrist, London
Dr Kerry Smith - GP, Chichester
Dr Lindsay Wakeford - GP, Rugby
Dr Angela Wilkinson - Consultant Geriatrician, Fife
Dr Rachel Jones - NHS Consultant, London
Dr Davina Darmamin - Community Paediatrician, Cardiff, Cardiff & Vale University Health Board
Dr Julia Bodle - Consultant in Obstetrics and Gynaecology, Sheffield
Louise Lumb - Healthcare Assistant, Huddersfield, Huddersfield Royal Infirmary
Dr Clare Bolt - Former Consultant Psychiatrist, Hereford
Dr Laura Hobbs - GP, Hampshire
Dr Kaveri Jalundhwala - GP Registrar, Thames Valley
Dr Nathalie MacDermott - Consultant Paediatric Infectious Diseases, Cambridgeshire
Dr James Gill - GP, Assistant Professor Warwick Medical School, Warwickshire
Dr Terry Segal - Consultant adolescent paediatrician, Adolescent Specialties Lead, University College London Hospitals, London
Fiona Mckechnie - Occupational Therapist, ME/CFS Advanced Clinical Practitioner, Bristol
Dr Ella Billson - ST4 anaesthetics, West Yorkshire Deanery, West Yorkshire
Dr Esther Mitchell - GP, Shetland
Dr Alice Leaney - GP, Somerset
Dr Leanne Royle - Consultant Paediatric Radiologist, Sheffield Children’s Hospital, Sheffield,
Dr Angela Rowntree - GP and Occupational Health Practitioner, Oxfordshire
Dr Sophia Williams - CAMHS Psychiatrist (ST6), London
Dr Rosemary Shilling - Consultant Anaesthetist, Midlands
Dr Ian M Frayling - Consultant in Genetic Pathology (retired), Honorary Senior Clinical Research Fellow, Cardiff University, Wales
Lesley Pickering - Specialist Occupational Therapist, North West Fatigue Clinic and Yorkshire ME/CFS Service, Lancashire
Dr Holly Vickers - Consultant Urogynaecologist, Mid Yorkshire Teaching Trust, Yorkshire
Dr Gregory Gibson - Resident Doctor, London
Sue Mangan - Practice Nurse, Primary Care, Greater Manchester
Dr Charlotte Morris - GP, Greater Manchester
Rebecca Matthews - Delivery Suite Coordinator, Harrogate and District Foundation Trust, Harrogate
Dr Leila Hummerstone - GP, Pickering Medical Practice, North Yorkshire
Dr Heather Reid - Paediatric Registrar, Royal London Hospital, London
Dr Tessa Dessain - Anaesthetic Registrar, Bristol
Hannah Ashcroft - Advanced Clinical Lead Practitioner, Leeds Teaching Hospitals, Leeds
Dr Alice Reid - Foundation Year 1 Doctor, Royal Devon and Exeter Hospital, Devon
Professor Carolyn Chew-Graham OBE - GP Principal and Professor of General Practice Research, Manchester
Dr Anna Porter - NHS GP, North Central London
Dr David Shakespeare - Consultant in Neurological Rehabilitation Medicine, Lancashire, Royal Preston Hospital
Dr Deepak Ravindran - Consultant NHS Pain Medicine, specialist interest in Long COVID, Berkshire
Dr Hollie Francis - GP Partner, Greater Manchester
Professor Amitava Banerjee - Consultant Cardiologist and Professor of Clinical Data Science, London
Dr Michelle Moore - GP Partner, Greater Manchester
Dr Cilla Rosen - GP with extended role in Long Covid, Hampshire
Professor Melvin Lobo - Cardiovascular Physician, Specialist in hypertension and PoTs, London, London Bridge Hospital
Dr Melissa Sargaison - Specialist Physician, Clinical Lead ME/CFS & Fibromyalgia Service, London, Royal London Hospital for Integrated Medicine
Dr Sarah Mason-Whitfield- GP, special interest in Emergency Medicine, London
Dr Helen Miles - GP, Oxfordshire
Professor Sarah Tyson - Physiotherapist and Honorary Professor of Rehabilitation, Manchester
Dr Asad Khan - Consultant Respiratory Physician, Manchester
Dr Ben Marsh - Consultant Neurodisability Paediatrician (retired), Exeter
Dr Abbas Khushnood - Consultant Paediatric Cardiologist, special interest in Long COVID, Newcastle
Dr Rebecca Goody - Consultant Clinical Oncologist, Leeds
Robin McNelis - Clinical Physiotherapist, special interest in Long COVID, Epping Forest
Dr Ben Sinclair - GP and Long Covid Doctor, London
Dr Clare Rayner - Consultant Physician in Occupational Medicine, Society of Occupational Medicine Long Term Illnesses Taskforce, Greater Manchester
Dr William Weir - Consultant in Infectious Disease, special interest in ME, London
Dr Claire Taylor - GP, special interest in Long Covid/ME, Perth, Scotland
Dr Rebekah Holmes - GP, Manchester, Northenden Group Practice
Dr Helen Salisbury - GP, Oxford
Sheryl Randhawa - Registered Nurse. Community Mental Health Nurse, London, Mother/Carer of Hannah who died of severe ME in 2022
Michael Lauchlan - Emergency Care Assistant, East Midlands
Amy Urry - Family and Systemic Psychotherapist, Exeter
Dr Rebecca Williams - GP Registrar with specialist interest in Paediatrics, training on hold due to ill health, West Yorkshire
Dr Rebecca Hall - GP, special interest in ME/Long Covid, Somerset
Dr Linn Järte - Specialist Registrar in anaesthetics, Wales
Julie Taylor - Nurse, special interest in Long Covid, Hull
Angela Tillen - Clinical Phlebotomist, supporting care of community patients with ME, Derby
Edd Tillen - Clinical Phlebotomist, supporting care of community patients with ME, Derby
Dr Clarke Gostelow - Junior Doctor
Dr Nicola Clague-Baker - Physiotherapist and Lecturer with special interest in ME, Liverpool, University of Liverpool, Physios For ME
Dr Michelle Bull - Physiotherapist, special interest in ME, Surrey, Physios For ME
Karen Leslie - Physiotherapist, special interest in ME, Merseyside, Physios For ME
Dr Charles Shepherd - Honorary Medical Advisor to ME Association
Dr Yasmin Levene - Histopathologist, London
Claire Appleton - Paramedic, Harrogate
Dr Eleanor Balmer - Consultant Paediatrician, Manchester
Carla Golding - Registered Nurse and Clinical Governance Advisor, Staffordshire
Aileen Mulligan - Registered Nurse, Belfast
Rachel Potter - Staff Nurse
Mandy Jones - Midwife, East Cheshire
Lorraine Horobin - Registered Nurse, Corporate Clinical Governance Facilitator, Staffordshire
Dr Nigel Speight - Paediatrician, special interest in ME, Durham
Dr Mark Fabrowski - NHS GP, Sussex, Medical Advisor to Long Covid Foundation
Dr Robin Kerr - GP, Scotland, Action For ME
Dr Katherine Wildon - GP, North West
Dr Joanne Murray - Consultant Clinical Psychologist, Manchester
Sarah Benjamins - Nutritionist, Manchester
Claire Sehinson - Functional Medicine Practitioner, Surrey
Amanda Dench - Paediatric Diabetes Nurse Specialist, East England, East of England Trust
Dr Stephanie de Giorgio - GP, East Kent
Mihai Mihai - Registered Nurse, Exetter
Dr Rageshri Dhairyawan - Consultant in Sexual Health, London
Dr Moira Phillips - Consultant Clinical Psychologist, Glasgow
Matthew Strang - Orthopaedic Surgeon, Bristol
Dr Kate Christie - GP, Surrey
Dr Emma Rivers - GP, Wetherby
Dr Azima Hussain - GP West Yorkshire
Dr Sakander Mahmud - Functional Disability Assessor (DWP), former GP registrar, West Yorkshire
Dr Alexis Gilber - Consultant in Health Protection, Leeds, UKHSA
Dr Sherena Nair - Consultant Elderly Medicine, Leeds, Leeds Teaching Hospitals NHS Trust
Dr Laura Graystone - GP Registrar, North Yorkshire
Dr Pia-Sophie Wool - GP, special interest in Paediatrics, Worcestershire
Dr Rachel Duncan - GP, special interest in Dementia, Sussex
Dr Johanna Theron - Clinical Lead Long Covid, Kent, Kent and Medway ICB
Kerry Davies - Registered Nurse, Cumbria
Dr Susie Harris - Emergency Care Registrar, Wirral
Dr Paul Smith - Consultant Physician, Lancaster
Dr Fayyaz Chaudhri - Community Dermatologist, North Cumbria
Dr Clare McNulty - Consultant Anaesthetist, Scotland
Sharon Garton - Registered Nurse, Derby, University Hospitals of Derby and Burton NHS Foundation Trust
Angela Marsden - Advanced Nurse Practitioner, East Sussex, Supporting Healthcare Heroes
Dr Alison Twycross - Nursing Professor and Deputy Dean (retired), Honorary Associate, Professor, Aylesbury, Supporting Healthcare Heroes, University of Birmingham
Dr Vikki McKeever - GP, special interest in ME/CFS, Leeds and York
Dr Elke Hausmann - GP, Derby
Amy Warbuton - Advanced Clinical Practitioner for Diabetes and Endocrinology, Lancaster, Royal Lancaster Infirmary
Dr Badia Ahmed - Histopathology Speciality Trainee Doctor, London
Dr Sheena Rakhra - GP, London
Gill Armstrong - Nurse Manager (retired), London
Professor Lesley Kavi - GP (retired), Visiting Professor, Warwickshire, Trustee and Chairperson of PoTs UK
Dr Rachel Reaveley - Rehabilitation Consultant, North East
Dr Anam Ahmed - GP and LTFT Obs and Gyne speciality training registrar, South Yorkshire
Dr Clare Rollason - GP, Urgent Care, Lancaster
Dr Andrew Blease - GP, East Kent
Sophie Lewthwaite - Registered Nurse, Cumbria
Deborah Singleton - Nurse specialist Long Covid, Manchester
Dr Yasmin Razak -NHS GP & Educator, London, Golborne Medical Centre
Dr Hannah Georgious - GP, Cheshire
Dr Paulette Ah-Chung - GP (Retired), Essex
Dr Gemma Banham - Consultant Renal Medicine and General Internal Medicine, West Midlands
Dr Nina Muirhead - Consultant Dermatologist, London
Dr Sarah Glynne - GP and Menopause Specialist, London, The Portland Hospital
Dr Paul Glynne - Consultant Physician, special interest in Long COVID, London, ULCH
Dr Ian Barros D'Sa - Consultant Radiologist, Birmingham
Dr Shaun Qureshi - Palliative Medicine Physician, Oxford
Dr Helen Smith - GP, Bedfordshire
Patricia Temple - Staff Nurse NHS
Dr Gareth Price - GP Partner, West Yorkshire
Dr Adelaide Lippold - GP, North Yorkshire
Clare Westwood - Advanced Nurse Practitioner, West Yorkshire, Huddersfield Royal Infirmary
Katie Wade - Advanced Clinical Practitioner, Paediatrics, West Yorkshire, Calderdale Royal Hospital
Leanne Spender - Midwife, North Yorkshire, Harrogate Royal Hospital
Dr Natalie Winfield - GP, Leeds
Ellen Dedus - Children's Community Nurse, West Suffolk, West Suffolk Foundation Trust
Kate MacDougall - Physiotherapist, Bedford
Sally Jennings - Palliative Care Physiotherapist (Retired), Leicester
Dr Timothy Jennings - GP (Retired), Leicestershire
Dr Julia Ward - GP, Dundee
Dr Eleanor Drager - Consultant in Genitourinary Medicine, London
Dr Cara Strachan - GP Locum, East Lothian
Dr Salina Jain-Parmar - GP, North Leeds
Dr Julie McDonald - Consultant Anaesthetist, Aberdeen, Aberdeen Royal Infirmary
Dr Calum McDonald - Consultant Anaesthetist, Aberdeen, Aberdeen Royal Infirmary
Dr Chia Liang - Consultant Geriatrician, London
Dr Rachel Ali - GP, Plymouth
Dr Sara Thompson - GP, Hertfordshire
Dr Amy Small - GP, Sheffield
Dr Catherine Steven - GP Partner, North London
Dr Lakhveer Manku - Consultant Physician, Manchester, Northern Care Alliance
Dr Mary-Ann Bentham - Consultant Paediatric Anaesthetist (Locum), Manchester, Manchester Children's Hospital
Dr Susannah Thompson - GP, North East
Dr Kul Bushan - Consultant Psychiatrist, London
Dr Anna Wylie - GP, Cambridgeshire
Dr Avril Washington - Consultant Paediatrician, London
Alice Martin - Midwife, Suffolk
Dr Angela Stevens-King - GP Partner, Cambridgeshire
Dr Aisha Sarwar - GP, Manchester
Karen Donaldson - Respiratory ACP, Lancashire
Anna Gregorowki - Consultant Nurse and BACME Chair, London, University College London Hospital
Dr Richard Tozer - Consultant Paediatrician and Local lead for ME/CFS, Devon
Dr Kelly Fearnley - Foundation Doctor, Bradford, Bradford Royal Infirmary
Maria Esslinger-Raven - Midwife, Lancashire
Dr Brian Holloway - Consultant Radiologist, London
Dr Wolfgang Water - GP, Bristol
Dr Sarah Jenkins - Consultant Neuroradiologist, Glasgow, NHS Greater Glasgow & Clyde
Dr Mary Zadik - GP, Greater Manchester
Dr Sarah Pocknell - GP (medically retired), London
Jonathon Dunn - Family and Systemic Psychotherapist, West Devon
Debora Tudge - Specialist Public Health Practitioner, Derbyshire
Emma Brown - Specialist Nurse, Cumbria, Dismissed from NHS on grounds of ill health, due to Long Covid
Professor Louise Cummings - Professor of Clinical Linguistics, York, St Johns University, UK
Rachel Jessey - Long Covid Nutritionist, Hampshire
Jessica Wainman-Lefley - Clinical Psychologist, Glasgow
Marina Townend - Specialist Occupational Therapist, Team Lead on ME/CFS and Post-Covid Syndrome services, Malvern Community Hospital
Dr Jonathan Fluxman - GP (retired), London
Dr Rachael Fear - SPT4 Obstetrics and Gynaecology
Sue Luscombe - Registered Dietician, Bedfordshire, Honorary Dietary Adviser ME Association
May Nisbet - Midwife (retired), Scotland, Aryshire and Arran NHS Trust
Dr Sarah Gawthorpe - GP with Special Interest in Dermatology, Southampton
David Martin - Clinical Psychologist, Suffolk
Dr Helen Day - Consultant GP, Yeovil, Ryalls Park Medical Centre
Dr Joanna Kirkcaldy - GP, Devon
Dr Chantal Meystre - NHS Emeritus Palliative Medicine, West Midlands
Dr Sophie Carpinteiro - GP and Genito-urinary Medicine Speciality Doctor, Brighton
Dr Sarah Jordan - Consultant in Acute Medicine and Gastroenterology, Darlington
Dr Alice Poskett - Obstetrics and Gynaecology, West Midlands
Mrs Amy Pearson - Consultant ENT Surgeon, Hull
Dr Sarah Loveridge - Surgical registrar (retired), Essex
Dr Jennifer Gibb - FY2 Doctor, Severn Deanery
Dr Christopher Gibb - GP, North Devon
Dr Rebecca Steed - GP, Nottingham
Dr Francesca Farmer - GP, London
Dr Sammy Syed - GP, Manchester
Dr Sharon Taylor - Psychiatrist, London
Dr Kerry Smith - GP, Chichester
Dr Lindsay Wakeford - GP, Rugby
Dr Angela Wilkinson - Consultant Geriatrician, Fife
Dr Rachel Jones - NHS Consultant, London
Dr Davina Darmamin - Community Paediatrician, Cardiff, Cardiff & Vale University Health Board
Dr Julia Bodle - Consultant in Obstetrics and Gynaecology, Sheffield
Louise Lumb - Healthcare Assistant, Huddersfield, Huddersfield Royal Infirmary
Dr Clare Bolt - Former Consultant Psychiatrist, Hereford
Dr Laura Hobbs - GP, Hampshire
Dr Kaveri Jalundhwala - GP Registrar, Thames Valley
Dr Nathalie MacDermott - Consultant Paediatric Infectious Diseases, Cambridgeshire
Dr James Gill - GP, Assistant Professor Warwick Medical School, Warwickshire
Dr Terry Segal - Consultant adolescent paediatrician, Adolescent Specialties Lead, University College London Hospitals, London
Fiona Mckechnie - Occupational Therapist, ME/CFS Advanced Clinical Practitioner, Bristol
Dr Ella Billson - ST4 anaesthetics, West Yorkshire Deanery, West Yorkshire
Dr Esther Mitchell - GP, Shetland
Dr Alice Leaney - GP, Somerset
Dr Leanne Royle - Consultant Paediatric Radiologist, Sheffield Children’s Hospital, Sheffield,
Dr Angela Rowntree - GP and Occupational Health Practitioner, Oxfordshire
Dr Sophia Williams - CAMHS Psychiatrist (ST6), London
Dr Rosemary Shilling - Consultant Anaesthetist, Midlands
Dr Ian M Frayling - Consultant in Genetic Pathology (retired), Honorary Senior Clinical Research Fellow, Cardiff University, Wales
Lesley Pickering - Specialist Occupational Therapist, North West Fatigue Clinic and Yorkshire ME/CFS Service, Lancashire
Dr Holly Vickers - Consultant Urogynaecologist, Mid Yorkshire Teaching Trust, Yorkshire
Dr Gregory Gibson - Resident Doctor, London
Sue Mangan - Practice Nurse, Primary Care, Greater Manchester
Dr Charlotte Morris - GP, Greater Manchester
Rebecca Matthews - Delivery Suite Coordinator, Harrogate and District Foundation Trust, Harrogate
Dr Leila Hummerstone - GP, Pickering Medical Practice, North Yorkshire
Dr Heather Reid - Paediatric Registrar, Royal London Hospital, London
Dr Tessa Dessain - Anaesthetic Registrar, Bristol
Hannah Ashcroft - Advanced Clinical Lead Practitioner, Leeds Teaching Hospitals, Leeds
Dr Alice Reid - Foundation Year 1 Doctor, Royal Devon and Exeter Hospital, Devon
list of names in spoiler above
I assume Dr Kane knows some of them, and the people who run the #ThereForMe campaign are in contact with others through Long Covid support groups. There may also be support groups of NHS workers with Long Covid and ME/CFS.
Binkie4
Senior Member (Voting Rights)
I was pleased to see Professor Lobo's name on it. I haven't seen him but have been seen in his clinic. A highly regarded mainstream doctor with a focus on blood pressure disorders.
"Professor Melvin Lobo is a pioneering cardiovascular physician and clinical hypertension specialist, based in London. He is renowned for his work as a specialist in all forms of blood pressure disorders, and has been involved in a number of key clinical studies of device-based therapies for these conditions. He is an internationally recognised specialist in hypotension (low blood pressure) and highly variable BP disorders and circulatory conditions including PoTS and fainting disorders. His group has been involved in novel treatments (some first in man) to help patients with these diagnoses."
"Professor Melvin Lobo is a pioneering cardiovascular physician and clinical hypertension specialist, based in London. He is renowned for his work as a specialist in all forms of blood pressure disorders, and has been involved in a number of key clinical studies of device-based therapies for these conditions. He is an internationally recognised specialist in hypotension (low blood pressure) and highly variable BP disorders and circulatory conditions including PoTS and fainting disorders. His group has been involved in novel treatments (some first in man) to help patients with these diagnoses."
Andy
Retired committee member
Ironic that Chew-Graham has signed it, given her involvement with the FINE trial and her interest in "..anxiety and depression, multiple health conditions, unexplained symptoms..", https://www.keele.ac.uk/medicine/staff/carolynchew-graham/#research-and-scholarship
I notice Louise Cummings' name in that list - she published this on language and cognition impairment in Long Covid, which looks like she understands it pretty well. (I especially liked her discussion of how traditional cognitive testing is inadequate to identify these impairments)
https://www.sciencedirect.com/science/article/pii/S2949903823000015
https://www.sciencedirect.com/science/article/pii/S2949903823000015
Dolphin
Senior Member (Voting Rights)
Yes, I wonder how many of them are "long covid people", particularly patients or others with a relative with the condition rather than those who have had a long-lasting interest in ME.
Dolphin
Senior Member (Voting Rights)
I also wonder how many are strongly critical of the biopsychosocial viewpoint e.g. with regard to graded activity/exercise/CBT. Possibly best not to assume that based on their signing this particular letter.
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I guess it is positive if people in health professions with a psyscosocial perspective or a history of one are signing up to this. A bit like cross party support in parliament. It needs addressing urgently so it’s a case of the more support the better.
And hopefully some discussion ensues within this group of signatories about how many severe very severe have been subjected to CBT/GET when their ME/CFS wasn’t severe.
And hopefully some discussion ensues within this group of signatories about how many severe very severe have been subjected to CBT/GET when their ME/CFS wasn’t severe.
Jonathan Edwards
Senior Member (Voting Rights)
I think there are fairly well established networks through the charities, and no doubt through BACME and the Primary Care BPS community. I think I may have been asked twice to sign this but had my doubts and politely said no thanks.
My concern is that it is very easy to sign this if you have a professional stake in ME/CFS. Of course we want better services for people with ME/CFS. But I have seen this sort of bid before and not liked the result I saw.
Streeting may ask a research assistant to look into it. Do we need more ME services? Better ask the people who do ME services. That would be BACME. We find a senior BACME member only too ready to advise. A multidisciplinary rehabilitation team is essential, not so much the doctors as the therapists. And of course we have to consult patients. They consult patients. Would you like a whole multidisciplinary team of all sorts of people including physios and stuff? Yes please. That's great.
And in terms of following NICE the senior BCME member would say of course that is essential, although, between you and me, I think the Guidelines were not good - much too influenced by patients (I am quoting...).
And if the research assistant also consults an eminent physician interested in ME/CFS or Long Covid they might well say that we should of course not be limited too much by guidelines. Yes, of course multidisciplinary teams are an essential start but there should be scope for exciting new experimental treatments like blood washing.
All credit to the organisers for trying to get support for quality care, but some of the names on the letter might be seen as the problem rather than the solution. The current government has a big focus on Primary Care, so that is the direction they would go in if they respond.
