The GoodHope Exercise and Rehabilitation (GEAR) Program for People With EDS and Generalized Hypermobility Spectrum Disorders 2022 Mittal et al

Andy

Andy

Senior Member (Voting rights)
Full title: The GoodHope Exercise and Rehabilitation (GEAR) Program for People With Ehlers-Danlos Syndromes and Generalized Hypermobility Spectrum Disorders

Introduction: The Ehlers-Danlos Syndromes (EDS) and Generalized Hypermobility Spectrum Disorders (G-HSD) comprise a heterogeneous group of genetic disorders of abnormal synthesis and/or maturation of collagen and other matricellular proteins. EDS is commonly characterized by manifestations such as multi joint hypermobility that can lead to musculoskeletal pains, subluxations and dislocations, fragile skin, organ dysfunction, and chronic significant diffuse pain with fatigue, deconditioning eventuating to poor quality of life. Evidence suggests exercise and rehabilitation interventions may ameliorate symptoms of unstable joints, recurrent subluxations/dislocations, and chronic widespread musculoskeletal pain. To date, there have only been a few reports describing exercise and rehabilitation care strategies for people with EDS.

Methods: In this manuscript, we describe the GoodHope Exercise and Rehabilitation (GEAR) program, its overarching principles, as well as the program development and delivery model. The GEAR program aims to decrease functional impairment, reduce pain, increase confidence in symptom self-management, and provide a community of support for people with EDS/G-HSD. To achieve these goals, we detail the model of care that includes exercise and rehabilitation therapy, education for self-management, and support accessing relevant community resources.

Strengths and Limitations of the Study: GEAR represents a novel exercise and rehabilitation care model for people with G-HSD and various clinical EDS subtypes, beyond the commonly included hEDS subtype. Systematic collection of data via validated measurements is ongoing and will guide the refinement of GEAR and support the development of emerging exercise and rehabilitation programs for people with EDS.

Open access, https://www.frontiersin.org/articles/10.3389/fresc.2021.769792/full
 
Old wine in the same old bottle. Always the same old wine in the same old model.

At what point should it be pointed out that it's either insane or pathological level of lying to endlessly present the exact same thing with the same label and pretending it's not the exact same thing every single time?

Those aims are very nice but aims are aspirational and everyone always intends well, even in alternative medicine. Intents are pretty much irrelevant unless outcomes can be demonstrated. But this is The Secret so aims and outcomes are considered the same, or whatever. Mostly whatever.
 
I first thought the Norwegian exercise/rehab clinic by the same name (only in Norwegian) had used an English translation to create the "GEAR" acronym...
 
What a title:
"The Good Hope Exercise and Rehabilitation (GEAR) Program for People With Ehlers-Danlos Syndromes and Generalized Hypermobility Spectrum Disorders"
made me laugh.
If it were a restaurant called "Good Hope" you'd probably think --- why not get a good chef --- more like "Good Luck" ---.
 
"increase confidence in symptom self-management"
If I meet someone having a heart attack I must remember to --- increase their confidence in system self management. OK it's based on the concept that part of the problem is your reaction to the symptom --- where's the evidence to support that/this crap works ---
 
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My attitude here is summed up as "Trials or go home." This is a poor hypothesis paper with (probably) a hint of marketing.
 
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