Self-help books for ME/CFS: are they all bad?

[Hoopoe]

My impression is that self-help books for ME/CFS are about treatment, which is mostly going to be bad advice. Are there any good ones that focus on how to live with the illness?

 

[JemPD]

I seem to remember Dr Shephard's book 'Living with ME' was ok, although its 20yrs since i read it!

 

[Oni]

I remember these two, also a long time since I read them, both from ME patients.

How to be Sick, Toni Bernhard - Kind of self-help.
The Sound of a Wild Snail Eating, Elisabeth Tova Bailey - More a memoir.

 

[MrMagoo]

https://me-pedia.org/wiki/Classic_Pacing_for_a_Better_Life_with_ME

is good.

There’s a pretty rubbish one I had recommended called Coping With Chronic Fatigue by T CHALDER
It has very bad reviews https://www.goodreads.com/en/book/show/2402954

 

[NelliePledge]

http://sallyjustme.blogspot.com/2014/08/index.html

@Keela Too wrote her blog a few years back

 

[JemPD]

There’s a pretty rubbish one I had recommended called Coping With Chronic Fatigue by T CHALDER

shudder

 

[Keela Too]

http://sallyjustme.blogspot.com/2014/08/index.html

@Keela Too wrote her blog a few years back

Wow. I’d almost forgotten writing all that stuff.

I stopped blogging when I was on the Guideline committee, and then got out of the way of it.

Though very satisfying to be part of the committee that ditched GET.

 

[JellyBabyKid]

Not an ME/CFS book but The Long Covid Handbook by Danny Altmann and Gez Medinger has some of the history of ME, covers management strategies and has good chapters on acceptance and on mental health with these illnesses.

I found it incredibly helpful and refer to it a lot (I also have Long Covid)