Renegade Research hosts a series of Research Roundtables and Clinician's Roundtables. Upcoming events in February are: Research Roundtable: Johns Hopkins ME/CFS Clinic Update Part 2 Peter Rowe, MD, & Alba Azola, MD will discuss the latest research on ME/CFS and Long COVID from their clinic. Friday Feb 14, 2025 - 1:00 PM ET (10:00 AM PT). Register here. Clinician’s Roundtable: John Haughton MD, MS - The Remission Biome Protocol. Clinicians and patients are invited to learn the protocol in detail. Friday Feb 21, 2025 - 1:00 PM ET (10:00 AM PT). Register here.
Renegade Research is the same as Remission Biome. RemissionBiome RemissionBiome is a project that uses antibiotics, probiotics, and other supplements to try to trigger remission events and lead to long term baseline increase in function.
https://www.remissionbiome.org/about/protocol-overview This so-called self-experimenting is being labeled as patient-led research. I can understand why someone would go down that rabbit hole, but it seems quite unsafe and unethical.
We have a thread about Remission Biome here: https://www.s4me.info/threads/the-o...ent-led-research-group-remission-biome.34076/
Have you registered? Join us tomorrow at our Clinician's Roundtable where our Medical Director John Haughton, MD at @doc4care will share how clinicians can guide patients through the @RemissionBiome protocol for ME/CFS and Long Covid. Invite your provider! Registration link below LINK
April 11, '25: "Orthostatic Flow Syndromes" Clinician's Roundtable zoom by Interventional Radiologist Steve Smith, MD. Relevant for POTS, fibromyalgia, ME/CFS, migraine, brain fog, IBS, vulvodynia, ADHD, and more. Register: LINK
Description Presenter Steven J. Smith, MD, will speak for a short time with a few slides and then there will a long Q&A/discussion session. Dr. Smith is now retired and publishing research, but in his long career as an interventional radiologist, he noticed that many of his Pelvic Congestion Syndrome patients had POTS and related syndromes, which often improved after treating the bad veins. Could poor blood flow be at the heart of some of these syndromes and symptoms? Dr. Smith makes the case. His studies show improvement in patients across 5 different centers, at 3-, 6-, and 12-month follow-ups, and across numerous symptoms. Dr. Smith will discuss his hypotheses about how venous disorders may underlie some cases of POTS, fibromyalgia, ME/CFS, migraine, brain fog, IBS, vulvodynia, ADHD, and more. His published studies include «Imaging findings of pelvic venous insufficiency in patients with postural orthostatic tachycardia syndrome" "An online survey of pelvic congestion support group members regarding comorbid symptoms and syndromes" "Improvement in chronic pelvic pain, orthostatic intolerance, and interstitial cystitis symptoms after treatment of pelvic vein insufficiency" Standing Up to POTS Podcast with transcript featuring Steve Smith from November 2024 https://www.standinguptopots.org/po...s-disorders-improves-pots-and-other-syndromes
Post on Bluesky: 1/ March 28, 2025 - Research Roundtable: The Acid Test - a Patient-led Study of Lactate in ME/CFS and Long COVID Todd Davenport, PhD, and Ciara Wright, PhD. A patient-led study, called The Acid Test", formed on Twitter based on reports of abnormal lactate in ME/CFS and Long COVID. 2/ Hundreds of patients around the world collected lactate measurements using at-home finger prick devices and then submitted their results for analysis. Ciara Wright, one of the patients who initiated the study, will give the background and history of the project... https://us06web.zoom.us/webinar/register/8317405199821/WN_K9oQDarhTPeaZAE9Aa3pGw
