I am not quite following (ok did have a g&t which is equivalent to at least 2.5 g&t given my alcohol tolerance) is there any subtext in this?


I hope you are enjoying it
I meant that the issue is that the problem of there being no sufficient clinics to study the condition (and be able. To give advice on what works and prognoses and do research) got ‘reframed’ to the problem being the patient.
Instead of being seen as the ones who are let down by the system (which could do better to have a structure that might ever lead to finding treatments) they just framed it to suggest WE ARE the problem. And they on a busy day we will turn up and be big time sucks … but that we shouldn’t be there because we only THINK it’s medical. So poor GPs being overwhelmed because of having to deal with ‘time wasters’
heart sink might be supposed to mean ‘nothing I can do’ but then it was ‘nothing I can offer’ which then became with the sales pitch suggesting me/cfs patients take up loads of appointments and are really difficult and CBT is ‘the treatment’ which would work if they tried hard enough the idea of ‘problem patient’. And a new kind who ‘just doesn’t want to do what works’ and ‘won’t get better’.
for a GP who is exhausted with a lot of other ‘deserving patients’ the irony is that the GPs who are part of commissioning so could be saying a biomedical clinic is needed have been led to reframe things as ‘it’s patients like this that mean I’m so busy , wasting my time’
If only it was the right people who were heard by this group and could say ‘a regional clinic could learn the right advice to manage these and start proper research’ ie there’s a need, it’s been pitched to them to see us a problem patients who should be sent to somewhere that doesn’t work
GPs are at best taught CBT ‘helps people cope’ so think if we keep coming back we just haven’t tried enough with the GET and can’t cope so ‘need more therapy’. Which is in itself just a framing.
the tricky thing is once you’ve co-opted someone to commission something on false promises of ‘it saving money’ then those people themselves can’t analyse that independently often because they made that decision, staked their own reputation on that, and it not being effective reflects on them so….