Professor Michael Sharpe

Andy said:
Of course this, and any further research following on from it, will definitely have nothing to do with ME....

A European Research Agenda for Somatic Symptom Disorders, Bodily Distress Disorders, and Functional Disorders: Results of an Estimate-Talk-Estimate Delphi Expert Study, Published May 2018

Authors: Christina M. van der Feltz-Cornelis, Iman Elfeddali, Ursula Werneke, Ulrik F. Malt, Omer Van den Bergh, Rainer Schaefert, Willem J. Kop, Antonio Lobo, Michael Sharpe, Wolfgang Söllner, and Bernd Löwe

Highlighted here,
https://s4me.info/threads/updates-o...tion-and-terminology-systems.3912/#post-77912, alternatively open access at https://www.frontiersin.org/articles/10.3389/fpsyt.2018.00151/full
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Oh my.. Hadn't seen this one before :(
One of the authors, Ulrik Malt, believes illnesses like ME are "trendy" conditions and becomes epidemic by being spread via social contamination.
In a teaching book about psychiatry he classified ME as neurasthenia.
 
Sid said:
Any pointed criticism they receive of their work they refer to as intimidation.
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It’s almost getting to the stage that any slur they hurl at us, is effectively an admission of their own guilt of that very thing. So they say we are intimidating them? Likely that is exactly what they are up to themselves! There is a name for this I think. Projection or something.
 
Cheshire said:
https://demonitor.kro-ncrv.nl/artikelen/hoogleraar-stopt-met-onderzoek-naar-mecvs-na-intimidaties
Google translate: https://translate.google.com/transl...,15700149,15700186,15700191,15700201,15700213
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I note they do not publish the email MS sent to C. Monaghan, where he says that her behaviour was 'unbecoming'o_O

Also, if he has washed his hands of CFS 'research' and still thinks PACE needs no further analysis, why is the MRC 'supporting the authors' in anonymising the PACE trial data? Or is it just Chalder doing it now?
 
While I don't necessarily think that this article will have much traction at this point I find it frightening from another perspective.

How easy (so very easy) it is to make a whole group of people, none of whom you've ever met or engaged with in any way -- Other. You see MS on the laptop screen and the person conversing with him with his hands fingertips touching in a 'thoughful' gesture. This is a man who thinks he is siding with reason because reason will always be found on the side of authority, of those who are educated and 'know better'.

This is paternalism at it's worst. No need to go to the source and have an open mind. The narrative of us all being the stupid unwashed is in fact appealing. It boosts the person in their own esteem.
 
It seems that every quote of a patient/activist came from replies to Sharpe's most recent batch of tweets that asked questions such as "What kind of research do patients want?" Was he planning on harvesting the most critical tweets and then calling them intimidation?

He asked for our thoughts. He started the dialogue and then framed the replies as "intimidation."



Edited for clarity(?) and fumbling with words.
 
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I think he's simply seen the inevitable downfall he has made for himself with his crappy science, and has been looking for an exit strategy - this is it I imagine. He's hardly the type to put his hands up and apologise and make good - instead it has to be everyone else's fault, as always. I think @NelliePledge is on the button that he's had to scratch around outside the UK for that; those in the UK maybe won't touch him with a barge pole now. Even SW seemed to be ready to throw MS under the bus the other day, with his words alluding to how "we" got things wrong, but probably meaning 0.1% blame SW and the rest on others ... enter MS.
 
CFS_for_19_years said:
It seems that every quote of a patient/activist came from replies to Sharpe's most recent batch of tweets that asked questions such as "What kind of research do patients want?" Was he planning on harvesting the most critical tweets and then calling them intimidation?

He asked for our thoughts. He started the dialogue and then framed the replies as "intimidation."



Edited for clarity(?) and fumbling with words.
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I think this is quite likely
 
CFS_for_19_years said:
It seems that every quote of a patient/activist came from replies to Sharpe's most recent batch of tweets that asked questions such as "What kind of research do patients want?" Was he planning on harvesting the most critical tweets and then calling them intimidation?

He asked for our thoughts. He started the dialogue and then framed the replies as "intimidation."
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I strongly suspect he was prodding for reactions, and sorely disappointed that the only reactions he got by and large were highly valid criticisms of his science. So making the 'best' of what he got and still trying to convince the gullible it was 'intimidation'. Just because the truth intimidates you MS, does not make it intimidation in the sense you imply.
 
Andy said:
and on Facebook
Code: 
https://www.facebook.com/demonitor/posts/1832943500123561
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There are some very pertinent comments on Demonitor's Facebook post which is very heartening. Virtually all the comments so far (at least those that I think I have understood) were very critical of Sharpe. (Apart from one commentor who kept getting annoyed that people were talking about ME. He asserted that PACE was relevant to only CFS and that Sharpe had personally confirmed that it had nothing to do with ME. It would be interesting to see what Sharpe had actually said on this.)

Unfortunately Sharpe, and perhaps also the reporter, rather than addressing the points raised are likely to see this as confirmation of what horrid bullies people with ME are.
 
Peter Trewhitt said:
(Apart from one commentor who kept getting annoyed that people were talking about ME. He asserted that PACE was relevant to only CFS and that Sharpe had personally confirmed that it had nothing to do with ME. It would be interesting to see what Sharpe had actually said on this.)
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I assume that would be Guido Den Broeder. If I recall correctly I'm sure I've seen him declare that anyone diagnosed with CFS can't possibly have ME.

For a response see this post: https://www.s4me.info/threads/diagn...he-labels-me-and-cfs.12101/page-8#post-313076
 
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Watt refers among other things to the reactions that Sharpe still gets daily, mostly on Twitter. There someone writes: 'Your convictions do not make sense and you are a danger for future research and our recovery.'
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If Sharpe asks the question of what kind of treatment the ME activists want, another responds: 'Actions from a man whose world is about to fall apart.' It also mentions "the great damage your fraudulent research has caused to millions of patients."
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I couldn't find the second quote as a response to his June 20th tweet, although one did mention "flawed research":



Second quote appears here though:



It's clear that he blocks once he's got what he wants.
 
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