Open Norway: Plasma cell aimed treatment with daratumumab in ME/CFS - Haukeland University Hospital

I wonder would they accept people who will relocate there for the first few months and the middle treatment month.

 

Probably not greatest idea because travel sounds like a major confounder in terms of PEM and function. But I completely understand the desire to try out the drug.

 

All of the info is in Norwegian. While I have not seen an explicit requirement that you speak Norwegian in order to be able to participate, I strongly suspect that it is the case. And as Yann said, traveling when moderate/severe will affect the results.

 

From what they told me, you must be in the Norwegian Health Care system, hence the requirement to be a resident. I'm not sure how quickly one could enter that.
They did not tell me any language requirements, I don't think you have to be/speak Norwegian from that they told me.

 

https://www.helsenorge.no/en/healthcare/Healthcare in Norway - Helsenorge

 

Can’t the Norwegian sovereign wealth fund be used to fund this? Seems like they want to keep increasing the amount of money in the fund, but don’t spend that much of it?


https://www.nbim.no/en/


Close to 2 trillion USD in this fund.

 

And the fund isn’t used directly by anyone, it’s only used to supplement the national budget (about 20 % of the total budget).

So they would have to apply to the normal funding bodies for (medical) research.

 

I think this is a very good point. Especially if some respected researchers signed the letter, that might give it some weight. But we would have to be careful about who drafts it. I'm having flashbacks to those 'fund BC007 phase 3 because it definitely works even though the phase 2 hasn't reported yet' type petitions that went around before last winter.

 

Oh, no, that's the terrible affliction witches suffer from. Terrible thing.

I'm melting, I'm meltiiiiing....