we don't seem to have a thread for Ireland Irish ME patients hope HSE will follow UK and scrap exercise therapy guidance https://www.thejournal.ie/me-exercise-5590653-Nov2021/ @Tom Kindlon @Brian Hughes
I'm not sure where this should go. The Irish Times is asking for peoples' experiences with gaslighting: @Tom Kindlon
Predictors of Submaximal Exercise Test Attainment in Adults Reporting Long COVID Symptoms, 2022, Romero-Ortuno et al A paper from an Irish group of researchers - researching CPET performance in people with Long Covid while seemingly being unaware of PEM and repeat CPETs. Looks as though they could use some help from people who are aware.
Safety and efficacy of low dose naltrexone in a long covid cohort; an interventional pre-post study, 2022, O'Kelly et al A small preliminary study of LDN by a group of Irish researchers: Brendan O'Kelly ab Louise Vidal b Tina McHugh b James Woo a Gordana Avramovic b John S.Lambert ab a Infectious Diseases Department, Mater Misericordiae University Hospital, Dublin 7, Ireland b School of Medicine, University College Dublin, Dublin 4, Ireland They seem to be calling for a randomised controlled study of LDN in Long Covid. A large, well done study would be good, as there's a lot of noise about LDN in ME/CFS/Long Covid, but not a lot of light. It looks as though this group could use the help of one or more expert patients.
Long Covid: Treatment of debilitating fatigue presents major challenge for Irish hospitals https://www.thejournal.ie/long-covid-fatigue-5844513-Aug2022/
ME Advocates Ireland (MEAI)'s Position on Label (name) and Diagnostic Criteria (case definition) http://meadvocatesireland.blogspot.com/
but I don't think it's possible if this Government keep ignoring it," she added. Sadly they have decades of practice at doing exactly that.
It concerns me that stories like this one focus on the lack of clinics and doctors helping people recover, when the reality at present is that all the clinics in the world have no clue how to make anyone recover. There is no cure except time and luck. Though people still need validation and support, and there may be symptomatic treatments that can help with some symptoms.
Speaking of: Long Covid clinics 'not helping', patients tell committee https://www.rte.ie/news/ireland/2024/0417/1443945-long-covid/ It would make a nice meme, to say having a disappointment at a LC/fatigue clinic rather than an appointment.
Longford energy healer found guilty of sexually assaulting a client Longford energy healer found guilty of sexually assaulting a client - Longford Live (longfordleader.ie)
