Key Strategies for Successful ME/CFS and Long COVID Disability Claims
Detailed, consistent documentation is essential. Physicians should describe specific restrictions rather than vague terms like “fatigue” or “brain fog.” Symptom diaries, family testimonials, and before-and-after photos or videos can strengthen the narrative. Cover letters and customized explanations can clarify fluctuating symptoms.
Use Objective Testing
Combining cardiopulmonary exercise testing (CPET) with neuropsychiatric assessments provides strong objective evidence. CPET can show inability to reproduce performance due to postexertional malaise, while cognitive tests document declines in areas such as attention and memory. Additional measures include the SF-36, fatigue or pain inventories, tilt-table or NASA lean tests, and in-ear blood-flow tracking devices. If patients cannot complete tests, this should be recorded.
Legal and Procedural Guidance
Patients should seek legal advice early. Expect initial denials, especially from Social Security, and prepare comprehensive appeals that address every point. Avoid insurer “deals” that limit long-term support. Treating physicians should not take unexpected calls from insurer-hired doctors; instead request written communication or include the patient’s attorney.
Overall Approach
Thorough medical and nonmedical evidence, proactive legal strategy, and careful documentation greatly improve the chances of a successful disability claim.
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