ME/CFS diagnosis and management among topics at free Pulse virtual event for GPs, Dr Alastair Miller, 24th March 2026

Beth

Beth

Established Member (Voting Rights)
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Beth said:
I wasn’t sure where to post this, but the article infers it’s part of the plan? A lot of people understandably furious on twitter/x, how on earth did this happen and who knew about it? Is these anything we can do? Does any one know any more about the content? https://www.pulsetoday.co.uk/news/c...g-topics-at-free-pulse-virtual-event-for-gps/
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Alastair miller telling everyone what it is and what they have to follow now

Just like when the RCP got him as the henchman to talk myths re Maeve’s inquest in newspaper articles

This is big so replying to bump for others to hopefully pick up and realise
 
Alastair Miller, 2025:

"It is essential that those affected by MECFS are aware that full recovery is possible whatever the severity of the condition notwithstanding the negative messages propagated by some organisations and websites"



measussex.org.uk

Recovery - Dr Alastair Miller - Sussex & Kent ME/CFS Society

Recovery from illness is an important concept that implies an individual has achieved the same state of health, function and well-being that they enjoyed prior to the illness or event that made them unwell. Both physical and psychological aspects of health are involved. Recovery may be partial...
measussex.org.uk measussex.org.uk

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Lou B Lou said:
Alastair Miller, 2025:

"It is essential that those affected by MECFS are aware that full recovery is possible whatever the severity of the condition notwithstanding the negative messages propagated by some organisations and websites"



measussex.org.uk

Recovery - Dr Alastair Miller - Sussex & Kent ME/CFS Society

Recovery from illness is an important concept that implies an individual has achieved the same state of health, function and well-being that they enjoyed prior to the illness or event that made them unwell. Both physical and psychological aspects of health are involved. Recovery may be partial...
measussex.org.uk measussex.org.uk

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Thinking of the ad by a student journalist on the MEA pages where they are looking for people still being referred for GET due to ‘misunderstandings’ of the illness

And whilst of course is is closed to those who aren’t GPs thinking that it would be useful for people like that to see this session and what info is being presented in what is made to look like ‘official sessions giving out the party line’
 
Lou B Lou said:
Is there a way to make Beth's post on the Pulse event more prominent?
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Agreed. The event is on 24th March and the me/cfs session isn’t the only talk that’s insightful on the agenda (the first one about chronic pain says 'how to naivgate the biopsychosocial maze with confidence' in the strapline vs there is a talk on AI use in chronic disease management) - the description at the top talks about better implementing bps

So I think it and then that specific talk is perhaps worth a thread of its own if pulse us as heeded to/used as the official word for GPs (so a way to distribute new policy and protocol) as I get the impression
 
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What I have seen of the draft template for service provision from DHSC is very vague about format. I don't recall it saying that GPs had a central role. But the only slide in the explanatory presentation that actually said what was to be delivered said 'multidisciplinary rehabilitation'. I have asked if these slides can be made available to the forum.
 
It has been very unclear what professionals had been consulted by DHSC in preparing their template. If it was Dr Miller that fits with what has emerged. What I am currently worried about is the apparent assumption by some ME/CFS advocacy groups that a community run service is an inevitable and acceptable way forward.
 
Beth said:
I wasn’t sure where to post this, but the article infers it’s part of the plan? A lot of people understandably furious on twitter/x, how on earth did this happen and who knew about it? Is these anything we can do? Does any one know any more about the content? https://www.pulsetoday.co.uk/news/c...g-topics-at-free-pulse-virtual-event-for-gps/
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From this Pulse article:

GPs are invited to a free virtual event this month featuring sessions across a variety of clinical topics across public health and chronic conditions, including how to best support patients with ME/CFS.

The Pulse 365 event, on 24 March, is designed to support GPs in confident decision-marking as well as highlighting strategies for earlier diagnosis and management. Tickets can be found here.

‘ME/Chronic Fatigue Syndrome – not just tired all the time’ will be presented by Dr Alastair Miller consultant physician at the Royal Liverpool University Hospital.

This comes following the Department of Health and Social Care’s announcement last summer that GPs will play a key role in delivering care for people with mild and moderate ME/CFS under a new delivery plan.

As part of the plan, NHS England is developing a ‘template service specification for mild and moderate ME/CFS’, which will be shared with integrated care boards (ICBs) to support commissioning.

Dr Miller’s session will look at:

What is ME/CFS?
How to diagnose the condition
How to manage and treat patients with ME/CFS
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So very much looking like business as usual.
 
hotblack said:
To play devils advocate, do we know this is part of the official delivery plan? Or someone trying to push their own agenda and make their approach look official?
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I don't think Miller's antics with Garner are anything to do with the delivery plan. The Plan representatives are clear that mental health services are not to be involved (I think). They are only interested in service format. But if Miller has been approached he will presumably have approved sticking to a multidisciplinary rehab format rather than bothering any members of the Royal College of Physicians who don't want to know. His position may be a bit ambivalent on that but I think the dumping on hope peddlers n.o.s. is liekly to be the main theme.
 
Lou B Lou said:
Alastair Miller, 2025:

"It is essential that those affected by MECFS are aware that full recovery is possible whatever the severity of the condition notwithstanding the negative messages propagated by some organisations and websites.
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I do not disagree that full recovery is possible. We know it happens, we just don’t know why. And we know that it is rare after 2 years.

I’ve been severe for more than 30 years but I still believe that full recovery is possible either by good fortune or through scientific progress. Often hope is all that keeps me going. And yet, ironically, almost everything that Miller writes about ME/CFS serves only to extinguish part of that hope.

It would have been more accurate if he’d said: “It is essential that those affected by MECFS are aware that full recovery may be possible whatever the severity of the condition, notwithstanding the evidence from clinical trials that there are currently no validated treatments, and the negative effects of those of us who continue to claim otherwise.”
 
Naomi Harvey just tweeted:





"I’ve already had a reply from Pulse magazine about the training course. They’ve removed the session from the programme while they investigate.

Thank you @KSchnickelfritz for the [letter] template!"








"And a reply from the editor in chief:

“Hi Dr Harvey, I’ve been informed by my events team that we are looking into this. Many thanks, Jaimie”


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