ME/CFS and Long Covid - Digging Deeper 7-8 May 2025 | Stavanger | Norway

Discussion in 'General ME/CFS news' started by Jaybee00, Apr 7, 2025.

  1. Jaybee00

    Jaybee00 Senior Member (Voting Rights)

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    This is posted under the Scandinavia thread but am posting as a stand alone as the registration deadline is approaching.

    https://www.mekonferanse.no/en/

    We know people who are attending, correct? @Kalliope @Marky Are they attending both the May 7 day session and the May 8 night session?

    I am really hoping that Oystein Fluge will release some more data from their Daratumumab trial. If anyone is attending and there is an opportunity to ask questions on Fluge’s talks, I have a couple of questions.

    1) How did they come up with the Daratumumab dosing schedule (4 SC injections spaced 2 weeks apart)?

    2) Does he think the Daratumumab injections are a cure or will the injections need to repeated again periodically?

    3) What are his thoughts about treating patients with high baseline IGG levels?

    They will release the May 8th talks as YouTube videos. Can anyone potentially record Fluge’s talk on May 7th, if allowed?

    Takk
     
  2. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Thanks for making a thread on this, @Jaybee00
    Unfortunately I'm not able to attend, but I'm sure we'll hear about it if exciting news are shared at the conference.

    The first day is for health care workers and not to be recorded. As you say the evening conference next day is for everyone and the talks will be recorded and made available. :)
     
  3. Utsikt

    Utsikt Senior Member (Voting Rights)

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    Do we know why it won’t be recorded?
     
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  4. Trish

    Trish Moderator Staff Member

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    Often the case with researcher meetings because they share unpublished data, and want to be free to discuss research developments.
     
  5. Jaybee00

    Jaybee00 Senior Member (Voting Rights)

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    Another question for Fluge—why does your phase 2 study only have 10 patients?
     
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  6. Utsikt

    Utsikt Senior Member (Voting Rights)

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    Peter Trewhitt likes this.

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