ME/CFS – The Devastating Chronic Disease - With No Cure, 2025, Robinson

[Dolphin]

Free fulltext:
https://biomedres.us/fulltexts/BJSTR.MS.ID.009536.php

ME/CFS – The Devastating Chronic Disease - With No Cure Volume 61- Issue 1

A T Robinson MS MLS ASCP cm*

• MS MLS ASCPcm – over 40 yrs laboratory medicine experience as Medical Laboratory Scientist/ Assoc Admin/Educator/Adjunct Professor/ Consultant and now semi retired as Project Mgr at NUMC NuHealth, Long Island, NY & as Clinical Advisor to Medical Laboratory Science universities/colleges & author/speaker as Laboratory Advocate, USA

Received: February 24, 2025; Published: March 18, 2025

*Corresponding author: A T Robinson, MS MLS ASCPcm – over 40 yrs laboratory medicine experience as Medical Laboratory Scientist/ Assoc Admin/Educator/Adjunct Professor/Consultant and now semi retired as Project Mgr at NUMC NuHealth, Long Island, NY & as Clinical Advisor to Medical Laboratory Science universities/colleges & author/speaker as Laboratory Advocate, USA

DOI: 10.26717/BJSTR.2025.61.009536



ABSTRACT
The main purpose of this article is primarily to bring much needed media attention and public awareness to the existence of ME/CFS along with Long Covid. Industry respect and legislation support so urgently needed to fund dedicated research for effective treatments and potentially a substantiated cure for the many suffering in silence.

Abbreviations: IM: Infectious Mono; NIH: National Institutes of Health

https://twitter.com/user/status/1910352572365291627

 

[Utsikt]

It’s a sympathetic article and they provide a fairly good overview of what ME/CFS is, but these two sections were a bit off:

Note: Many patients with ME/CFS concurrently are also afflicted with degenerative autoimmune diseases (immune system of the body attacks the healthy tissues and organs) along with POTS (Postural Orthostatic Tachycardia Syndrome – a disorder of the autonomic nervous system) and neuropathies and FMS (fibromyalgia) and now also Long Covid (chronic illness persisting after an initial COVID-19 infection).

Do we have grounds for saying that ME/CFS patients on average have more degenerative autoimmune diseases?

Cure? – Treatment?
NONE. Absolutely none. There is NO cure – and there is NO effective treatment. These illnesses are progressive – patients will continue to decline unless something is developed to help treat or put diseases into remission.

No they are not. There’s the possibility of deterioration, but that’s no the same as being progressive.

 

[Sean]

There’s the possibility of deterioration, but that’s no the same as being progressive.

It is possible that both progressive deterioration and substantial sustained improvement are true. It may be progressive for some and not for others.

 

[Utsikt]

It is possible that both progressive deterioration and substantial sustained improvement are true. It may be progressive for some and not for others.

Yes, but that doesn’t mean that we can say categorically that ME/CFS is progressive like they do here.

 

[Sean]

Yes, but that doesn’t mean that we can say categorically that ME/CFS is progressive like they do here.

No argument there.