Online: Renegade Research 'Research Roundtable', T cell dysfunction in ME/CFS seminar, May 23rd 2024

Discussion in 'ME/CFS research news' started by Jaybee00, May 22, 2024.

  1. Jaybee00

    Jaybee00 Senior Member (Voting Rights)

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  2. Jaybee00

    Jaybee00 Senior Member (Voting Rights)

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    Question.

    What is Remission Biome’s role in this? I don’t get it.
     
  3. Yann04

    Yann04 Senior Member (Voting Rights)

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    Can’t remember which but I think renegade research is “run by” remission biome, or the other way around.
     
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  4. Jaybee00

    Jaybee00 Senior Member (Voting Rights)

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    Yeah but they are the group telling people they have a secret treatment protocol with antibiotics.
     
  5. Yann04

    Yann04 Senior Member (Voting Rights)

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    Yeah I’m not saying I endorse them. Just that that might explain why this renegade research seminar includes remission biome.
     
  6. Jaybee00

    Jaybee00 Senior Member (Voting Rights)

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    On now
     
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  7. Jaybee00

    Jaybee00 Senior Member (Voting Rights)

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    Came on late—she is promoting “inspiratol” maybe I should log off?
     
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  8. Yann04

    Yann04 Senior Member (Voting Rights)

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    As far as i know that drug is supposed to decrease inflammation through the microbiome. On ME-pedia it says atleast 2 different clinical trials have been started but none published, I wonder if they will be published in future or it was found to be ineffective.

    Given there are no published findings on it, them promoting the drug seems dodgy to me.
     
    Last edited: May 23, 2024
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  9. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    If it ducks like a quack, there is a high chance...
     
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  10. Mij

    Mij Senior Member (Voting Rights)

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    We have a thread on inspiritol

    A member did post a pic of a duck.
     
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  11. Yann04

    Yann04 Senior Member (Voting Rights)

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    I’m saving that picture it’s gold, thanks for bringing it up
     
  12. Jaybee00

    Jaybee00 Senior Member (Voting Rights)

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    I wasn’t really happy with that talk with everyone hyping that likely bogus inspiritol thing.
     
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  13. NelliePledge

    NelliePledge Moderator Staff Member

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    Just even going by the name - inspiritol - makes it sound like snake oil
     
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  14. Kitty

    Kitty Senior Member (Voting Rights)

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    :D

    It sounds like bottled NLP.
     
  15. Sean

    Sean Moderator Staff Member

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    One of Oliver Sacks' encephalitis lethargica patients in Awakenings (Leonard L. ?), who responded dramatically to L-Dopa, called it something like Resurrectine.

    However, like all the patients who tried the drug, he soon regressed and eventually stopped taking it.

    You'd think that was a warning from recent history about inappropriate naming of drugs.
     

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