Maeve Boothby O'Neill - articles about her life, death and inquest

Jonathan Edwards said:
And yet nothing will be done. The gastroenterologists are digging themselves ever deeper into the belief of a 'third group' of functional patients who need not be kept alive like people with either physical or psychiatric illness.
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Oh, no, they have moved on from that. Haven't you heard? They're now disorders of gut-brain interaction. Or whatever. For now anyway. Next month, who knows? Maybe upset or nervous tummies will be back in fashion.
 
Chestnut tree said:
In my view we need to copy the quack’s media campaign. Only their side is being broadcasted everywhere. That’s why the population at large (most drs included) have no idea of the true nature of ME.
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Their strategy only works when you have the balance of power. They have the totality of power. We can't copy any of what they're doing, and this is why it's so easy for them, they can just laze their way into parroting the same nonsense and still get showered in money and praise.
 
rvallee said:
Their strategy only works when you have the balance of power. They have the totality of power. We can't copy any of what they're doing, and this is why it's so easy for them, they can just laze their way into parroting the same nonsense and still get showered in money and praise.
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we do need to coordinate better though rather than have lots of people saying all sorts of disparate things 'because any awareness is good' not realising that causing noise actually reduces awareness and increases distance to getting there, unless things are set up to juxtapose (ie if people say slightly different things because they dovetail then that dovetail needs to be elucidated so it doesn't look like it contradicts or everyone 'just disagrees') which to the laypersons appear to contradict each other like we cant decide vs the bps refined set of lines and stories.
 
bobbler said:
we do need to coordinate better though rather than have lots of people saying all sorts of disparate things 'because any awareness is good' not realising that causing noise actually reduces awareness and increases distance to getting there, unless things are set up to juxtapose (ie if people say slightly different things because they dovetail then that dovetail needs to be elucidated so it doesn't look like it contradicts or everyone 'just disagrees') which to the laypersons appear to contradict each other like we cant decide vs the bps refined set of lines and stories.
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I feel like we need a “zinger” of a phrase, if there was a catchy, snappy, undermining retort it would go viral and shut down this kind of thing quickly and easily.

I can’t think of one. I’d probably go with “not this magical thinking solution again!” Or “I’m not “manifesting” these symptoms, so I can’t “think” them away!”
 
bobbler said:
we do need to coordinate better though rather than have lots of people saying all sorts of disparate things 'because any awareness is good' not realising that causing noise actually reduces awareness and increases distance to getting there, unless things are set up to juxtapose (ie if people say slightly different things because they dovetail then that dovetail needs to be elucidated so it doesn't look like it contradicts or everyone 'just disagrees') which to the laypersons appear to contradict each other like we cant decide vs the bps refined set of lines and stories.
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Yeah one example is often activists will use “ME/CFS is rare” as a kind of easy explainer why it’s so neglected without diving into the systemic stuff.

But then we have others calling ME/CFS things like “The most common disease you’ve never heard of” etc. So to people who read both it probably just feels like a lot of contradictory noise.
 
MrMagoo said:
I feel like we need a “zinger” of a phrase, if there was a catchy, snappy, undermining retort it would go viral and shut down this kind of thing quickly and easily.

I can’t think of one. I’d probably go with “not this magical thinking solution again!” Or “I’m not “manifesting” these symptoms, so I can’t “think” them away!”
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Thinking about it more, what conditions do exist which manifest “real symptoms” because you think you’re ill?

Munchausens/Facetious disorder is not counted as that’s manipulation rather than true belief you have the illness you’re play acting.

Health Anxiety can cause issues maybe?

Any others?

Because maybe we should be loudly and enthusiastically congratulating these BPS evangelists on discovering a new branch of science. And this discovery must just be the start!
 
We sure need robust counter action in NZ. Here is a FB post from one of the most (EDITED to remove judgemental term) practitioners who is popular with our GPs.

Mel Abbott Empower Therapies “Only a couple of weeks till I present at the GP Conference again! Here is my latest topic. I have written a whole new presentation about how to recognise the emotion patterns behind various chronic illnesses, as well as the latest scientific research to show the link between emotions and illness!
I LOVE presenting at the GP Conference! I have done it about 5 times now and been voted Best Speaker out of 200 speakers TWICE, and was 2nd another time. I LOVE that doctors are so keen to expand their knowledge into the mind-body arena these days. Doctor's referrals are now my 2nd biggest source of clients (behind word of mouth). When doctors and alternative practitioners are working together, we will get the best outcomes for our people!”

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Deanne NZ said:
We sure need robust counter action in NZ. Here is a FB post from one of the most odious practitioners who is popular with our GPs.

Mel Abbott Empower Therapies “Only a couple of weeks till I present at the GP Conference again! Here is my latest topic. I have written a whole new presentation about how to recognise the emotion patterns behind various chronic illnesses, as well as the latest scientific research to show the link between emotions and illness!
I LOVE presenting at the GP Conference! I have done it about 5 times now and been voted Best Speaker out of 200 speakers TWICE, and was 2nd another time. I LOVE that doctors are so keen to expand their knowledge into the mind-body arena these days. Doctor's referrals are now my 2nd biggest source of clients (behind word of mouth). When doctors and alternative practitioners are working together, we will get the best outcomes for our people!”

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I can’t believe Big Pharma isn’t trying to get her shut down!
 
dave30th said:
a third group? which are the first two groups?
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'Physical' and 'psychiatric'.
The point being that it is now explicit that 'functional' is neither, it is just your own fault so you do not deserve to be kept alive, just given 'robust psychological support'.

The mismanagement of ME/CFS was never about treating it as a psychiatric illness. It was treating it neither as physical nor as psychiatric. This is now explicit in the guidance on feeding being put out by British Society for Gastroenterology and Royal College of Physicians.

Or to put it otherwise, psychiatry has always been two specialties, a real specialty of psychiatry and a bogus specialty of psychodynamics, hung over from Freud, which is what has morphed into the BPS cult and all the functional drivel we now see - Mind over Matter.
 
Jonathan Edwards said:
'Physical' and 'psychiatric'.
The point being that it is now explicit that 'functional' is neither, it is just your own fault so you do not deserve to be kept alive, just given 'robust psychological support'.

The mismanagement of ME/CFS was never about treating it as a psychiatric illness. It was treating it neither as physical nor as psychiatric. This is now explicit in the guidance on feeding being put out by British Society for Gastroenterology and Royal College of Physicians.

Or to put it otherwise, psychiatry has always been two specialties, a real specialty of psychiatry and a bogus specialty of psychodynamics, hung over from Freud, which is what has morphed into the BPS cult and all the functional drivel we now see - Mind over Matter.
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But still they are wasting resources on us, cbt we don’t need, physiotherapy we don’t need.

These psychologists and physiotherapists could be used for the waiting lists for people who really need/want to be treated.

The money freed up, could be used for ME research.

(I know too simple)
 
Deanne NZ said:
We sure need robust counter action in NZ. Here is a FB post from one of the most (EDITED to remove judgemental term) practitioners who is popular with our GPs.

Mel Abbott Empower Therapies “Only a couple of weeks till I present at the GP Conference again! Here is my latest topic. I have written a whole new presentation about how to recognise the emotion patterns behind various chronic illnesses, as well as the latest scientific research to show the link between emotions and illness!
I LOVE presenting at the GP Conference! I have done it about 5 times now and been voted Best Speaker out of 200 speakers TWICE, and was 2nd another time. I LOVE that doctors are so keen to expand their knowledge into the mind-body arena these days. Doctor's referrals are now my 2nd biggest source of clients (behind word of mouth). When doctors and alternative practitioners are working together, we will get the best outcomes for our people!”

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It turns out that medical doctors are just as gullible as any random Joe reading through 4chan or listening to Rogan's podcast. Pseudoscience is spreading like wildfire in health care as a result. I saw today an article about French hospitals offering all sorts of alternative medicine stuff. When people go to hospitals, see that they offer Reiki, what impression does it give them? That it's all medicine. There is no longer any separation between science and pseudoscience in health care.

Enshittification is everywhere. Humans used to deal with information conflict by just going with whatever official sources decided was true, but as a whole are not capable of doing it without this. Not when they see Facebook memes casting doubt about vaccines, and certainly not when they go to a GP conference and hear about emotional illness memes, or whatever BS that person is selling.
 
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