Living with ME: Wellcome Collection

Sly Saint

Sly Saint

Senior Member (Voting Rights)
Jeremy Jeffs is a filmmaker and photographer whose experience of living with ME/CFS inspired him to talk to and photograph others with the same illness. Here nine people reveal the devastating difficulties the condition brings – including their struggles to be believed by medics, to get a diagnosis, to access support, and simply to keep going.
Click to expand...

Myalgic encephalomyelitis, known as ME, as well as chronic fatigue syndrome (CFS), is a doubly invisible illness. Not only are the symptoms hard to see, but the disease also attracts little understanding from the public and, at times, the medical profession. This leads to people with ME experiencing prejudice and disbelief, making them feel stigmatised and isolated.

I live with ME myself and for the past two years I’ve been meeting with, talking to and taking portraits of people who also contend with ME every day. Some have ME so severely that they are confined to bed, some are able to work part time, and many others struggle to simply keep up with a basic existence.

The lived experience we share has enabled me to connect and build a relationship with each person. Their words and portraits bring an identity and a visibility to an unseen community, demonstrating the range of people living with ME and the often devastating impact it has on their lives.
Click to expand...

Living with ME | Wellcome Collection
Portraits and interviews by Jeremy Jeffs
real photos of real pwME
 
Jeremy was very calm and patient when photographing. He moved carefully and deliberately. He talked as much as I wanted to and was happy with silence when my stamina deserted me.

Jeremy has travelled many miles round the country putting this together. The result is a clear narrative. Well done Jeremy, thanks for your commitment to this project.
 
Daisy said:
Jeremy was very calm and patient when photographing. He moved carefully and deliberately. He talked as much as I wanted to and was happy with silence when my stamina deserted me.

Jeremy has travelled many miles round the country putting this together. The result is a clear narrative. Well done Jeremy, thanks for your commitment to this project.
Click to expand...

We did ask if he could see if this exhibition could come to Suffolk & North East Essex?

Bearing in mind our news that ICB has endorsed our hard fought over new service spec and pathway yesterday. .....in Colchester, it would be nice and fitting !?


https://firstsite.uk/ ?
Or University of Suffolk which has a new Medical School?

https://www.uos.ac.uk/study/bsc-biomedical-science/
 
Last edited:
You must log in or register to reply here.
Back
Top Bottom