International ME/CFS Conference of the Charité Fatigue Center on 11./12. May 2023 in Berlin, supported by the ME/CFS Research Foundation

2nd International Meeting of the CFC - Charité Fatigue Center

ME/CFS Conference 2023 - Understand, Diagnose, Treat

Date:
Thursday, May 11, 2023, 9 a.m. to 6 p.m.
and Friday, May 12, 2023, 9 a.m. to 2 p.m

https://www.medpoint-gmbh.de/me-cfs-conference-2023

Link to Flyer / PDF on the registration website.



No participation fees.
The conference is intended for clinicians, scientists and interdisciplinary experts.
We are looking forward to your participation!
 
Among the topics to be covered - some slightly concerning ones there:
Treatment
State of the Art – Multiprofessional Inpatient Treatment – Treating Orthostatic Intolerance – Medical Care Situation & Stigma – Psychological Support –
B and Plasma Cell Targeting – Immunoadsorption – Neuromodulation – Late breaking
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It does look interesting. Tempting to sign up and try to follow some of it online if it's in English, but I do find such things exhausting. Maybe I'll manage some of it but I can't promise to take any notes or be able to say anything coherent afterwards.

Is anyone else able to watch it?

Is there any indication of how much will be in German and how much in English?
 
Trish said:
Maybe I'll manage some of it
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To me, the most interesting part is the afternoon of Day 1. It's still three and a half hours, but there's about a half-hour break.

What I've done with online conferences in the past is to listen to the first few minutes of each presentation, and see whether I'm taking in what the person's saying. If I'm not, I turn the sound off, take a break, and start again with the next one. It often depends as much on the person's presentation style as the accessibility of the topic—but there's no point giving myself headache trying to understand a short, information-packed presentation that I might be able to read about at leisure later.
 
Good advice, thanks Kitty. I found when I did some of the reporting for the forum for the IACFSME conference last year that note taking was a killer. And I agree when they present complex information fast or speak with an accent my less than perfect hearing can tune into, I'm sunk. If I do attend I'll pick and choose carefully and not make any promises about reporting. If they'd publish conference abstracts that would be great.
 
I have registered. For once I actually read the terms and conditions before signing on. Note it says screenshots and recording are prohibited.
Now all I need to do is remember it's on and the time difference.
And of course wait to see if they accept my registration.
 
Last edited:
belbyr said:
What is concerning to you?
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The treatment section on Friday Hutan expressed concerned about now reads:
____________________

Treatment I

Chairs: Luis Nacul (Canada) Andrea Maier (Germany)

09:00 Treating ME/CFS – State of the Art Luis Nacul

09:20 Multiprofessional Inpatient ME/CFS Treatment Johannes-Peter Haas

09:35 Neuromodulation in ME/CFS Michael Stingl

09:55 Medical Care Situation and Stigma with ME/CFS Laura Froehlich

10:10 Psychological Support in ME/CFS Bettina Grande
______________

Treatment II

Chairs: Olav Mella (Norway) Harald Pruess (Germany)

11:00 B and Plasma Cell Targeting in ME/CFS Øystein Fluge

11:20 Immunoadsorption in Severly Affected ME/CFS Patients Wolfgang Ries

11:40 Immunoadsorption in PCS and ME/CFS Elisa Stein

11:55 Treating Orthostatic Intolerance in ME/CFS Andrea Maier

12:10 Vascular Targeting in ME/CFS Klaus Wirth
__________________

My concern would be that we haven't seen clinical trial evidence supporting any of these treatments, so unless they are going to report progress or completion of a clinical trial, they may have little evidence to present. I hope they make that clear and don't just talk about what they do with patients and make unsubstantiated claims. We'll see.

I hope others will sign up and report back.
 
Trish said:
____________________

Treatment I

Chairs: Luis Nacul (Canada) Andrea Maier (Germany)

09:00 Treating ME/CFS – State of the Art Luis Nacul
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Am very interested in a report from this 20 minute presentation by Luis Nacul on Friday. Unfortunately I won't be able to catch it as it's at 1 AM for me in Western Canada.

Don't have the energy to go into a lot of detail now but am finishing the year long Complex Chronic Disease Program out of Vancouver which Luis Nacul heads and still trying to figure out why Central Sensitivity Syndrome remains a part of the program.

Thanks in advance if anyone is able to pass on the general gist of the presentation!
 
Helene said:
Don't have the energy to go into a lot of detail now but am finishing the year long Complex Chronic Disease Program out of Vancouver which Luis Nacul heads and still trying to figure out why Central Sensitivity Syndrome remains a part of the program.
Click to expand...
It would be interesting to hear more about that sometime on a new thread when you have the energy.
 
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