https://www.youcanknowthings.com/how-one-neuroscientist-solved-the-mystery-of-his-own-long-covid-2/ Interesting article, sadly few have access to this level of testing Ritixumab being used
Yeah, it’s the difference between research and treatment too I think. Most of us have access to and interactions with health services, which are really treatment services. Investigations performed are just to find which predefined path we are put on, not to understand something. If there isn’t a predefined path then you’re pretty much out of luck. The mention of CIDP is interesting, and something I came across only recently in the context of others who had significant reactions to the covid vaccines.
CIDP is not Long Covid and has established diagnosis and treatment, although looking at stories on reddit /GBS, patients frequently seem to have delayed or misdiagnoses.
You Can Know Things: 'How a neuroscientist solved the mystery of his own long COVID' (blog) Jan 07, 2025 (Bolding added by me)
Interview with the same person on the same blog a few weeks later: A conversation with a neuroscientist who developed long COVID This is mostly about what it's like being a scientist with long COVID, how does he feel about the pandemic. Not really any more science of his condition.
Man who works in neuroscience fails to cure own disability; is praised for curing own disability. We can all write daft headlines.
This is the problem with "Long COVID". You can cure your post-COVID anosmia with garlic or something and say that you cured your own Long COVID.
Interesting and odd to read just after I’ve read the thread on Suzanne o’Sullivan, who was also apparently a neurologist, but also a storytelling author, where the latest is her giving her options on long covid and psychosomaticism and then goes on to start listing many other specialty clinics she says 30% of patients attending are psychosomatic like respiratory and gynaecology
