The American ME and CFS Society (AMMES) was not originally intended to be an eviction defense organization. Our mission was very much in keeping with other 501(c)(3) nonprofits; that is to say, it was broadly defined. We aimed to provide support, advocacy and education, and to assist patients and their families with practical needs, such as locating a doctor and finding effective treatments. However, it soon became apparent that the most pressing needs faced by disabled patients were not covered by our mission statement.
A few months after launching AMMES, we held a fundraiser to gather resources for our newly formed financial crisis fund. The fund was intended to help severely ill patients pay for a single necessary expense, such as medicine, food, or housing. We viewed the fund as an adjunct to other social services, a stop-gap measure. At the time we did not fully grasp how dire the circumstances were for these people with ME/CFS.