1. Guest, the 'News in Brief' for the week beginning 19th September 2022 is here.
    Dismiss Notice
  2. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Healthwatch England - Resource for Campaign Assistance

Discussion in 'General Advocacy Discussions' started by Suffolkres, Jan 16, 2019.

  1. Suffolkres

    Suffolkres Senior Member (Voting Rights)

    Messages:
    1,341
    Moderator note: This post and subsequent discussion have been moved from this thread:
    Forward ME Group CBT/GET Survey - Tell NICE your experiences

    I have just telephoned Healthwatch who may be interested to help generally...... More on this later;


    Policy and Public Affairs
    Jacob Lant - Head of Policy and Public Affairs


    020 74 481795

    Jacob.Lant@healthwatch.co.uk
     
    Last edited by a moderator: Jan 17, 2019
    rvallee, Sly Saint, Lisa108 and 8 others like this.
  2. Suffolkres

    Suffolkres Senior Member (Voting Rights)

    Messages:
    1,341
    A useful phone call and a result....



    https://www.nationalvoices.org.uk/blogs/engaging-healthwatch

    National Voices’ local influencing and campaigning network brings together professionals in member organisations who run campaigns that try to effect change at a local, as well as national level.

    At our last network meeting in September, Jacob Lant, Head of Policy and Public Affairs at Healthwatch England joined members to talk about how charities can work with Healthwatch locally and nationally.

    Whilst many network members have worked with Healthwatch in the past, none of us fully understood how they operated and how best to work with them to benefit those we support.

    This blog attempts to make things a bit clearer for voluntary sector organisations looking to work with Healthwatch.

    Healthwatch’s structure and operational model

    Healthwatch is a national network of statutory organisations set up to give local people a say in how health and social care services should be run.

    The network has a national body, Healthwatch England, and 152 independent local Healthwatch covering each local authority area in the country. Every Healthwatch sets their own priorities based upon local intelligence. However, the combined priorities are analysed on an annual basis and are used to set the workplan for Healthwatch England.

    The network is supported by a team of regional managers split across four regions – North, London, South and Central. Local Healthwatch across these regions meet on a quarterly basis to share intelligence, discuss priorities and identify opportunities for joint working.

    Healthwatch have a range of statutory duties and powers. These include the ability to visit any taxpayer funded health and care service to speak to people about their experiences of care and report this to providers, commissioners and national regulators. Each Healthwatch also has a seat on their local health and wellbeing boards.

    Through the conversations they have with health service users, they amass huge amounts of data on people’s experiences. This is where their campaigning power lies: the data enables them to identify issues and evidence their campaigns. They publish analysis and top line data, and are happy to work with charities to delve into the detail on specific issues and conditions. You can email research@healthwatch.co.uk with requests.
     
  3. Suffolkres

    Suffolkres Senior Member (Voting Rights)

    Messages:
    1,341
    Engaging with Healthwatch

    [​IMG]
    Thu, 1 November 2018
    Jess Brayne
    Membership and Events Manager
    @JessicaBrayne
    Tips on how voluntary sector organisations can work with Healthwatch:
    • Have a local campaign you’d like to work with them on? Approach the regional managers to see if they can help get the word out.
    • Offering a service? Contact your local Healthwatch so they know to signpost to you.
    • Delve into all that data they collect: Healthwatch hears from over 400,000 people a year which means there is always more data than they can publish. But they are happy work with charities to provide access to their evidence and help build a shared understanding of specific issues. You can email research@healthwatch.co.uk with requests.
     
  4. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    3,502
    Healthwatch produced a report on ME/CFS a few years ago.

    There was even talk they would write one or more papers but I remember a patient who had pushed Healthwatch to do the report then being very angry that the research could end up in one or more published papers; I never really understood this objection as I thought published papers could be useful (I decided to not voice this opinion as the individual was very animated and I hadn’t read a lot of some very long messages on it).
     
  5. Suffolkres

    Suffolkres Senior Member (Voting Rights)

    Messages:
    1,341
    I believe that part of the problem was the "hijacking" of the report and the "embargo" place on publishing by another organisation effectively claiming the work to be of their making.........and it to be under their control...... patients who have worked hard to initiate a project do not wish for their efforts to be used in this way.
     
  6. Suffolkres

    Suffolkres Senior Member (Voting Rights)

    Messages:
    1,341
    if you read the full report, GET and CBT are commented on.
     

    Attached Files:

    andypants and Dolphin like this.
  7. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    3,502
    Yes, but because there was no research paper, they have little status and the findings have been largely ignored.
     
  8. Suffolkres

    Suffolkres Senior Member (Voting Rights)

    Messages:
    1,341
    Agreed, but the survey is still "open", can be revisited, accredited and achieve some status.
     
    andypants likes this.
  9. Suffolkres

    Suffolkres Senior Member (Voting Rights)

    Messages:
    1,341
    Perhaps Forward ME and MEA can approach Healthwatch England to gain access to their capacity and funding to assist the survey in the longer term, as this should not be done and dusted by March surely?

    https://healthwatchtrafford.co.uk/get-involved/surveys/mecfs-survey/

    The aim of this survey is to gather and understand experiences of ME/CFS patients accessing health services.

    By gathering this information, we will be able to identify where services are doing well and where they need to improve. We can then work with services and commissioners to make them better.


    If you are effected by ME/CFS we would really appreciate hearing your experiences, it should only take a few minutes. Please also be aware that your answers are COMPLETELY ANONYMOUS - you cannot be identified by your responses and we will not ask for your name at any point so please be honest. We will publish a report about our findings but individuals answers will never be made public. Local Healthwatch are completely independent organisations and are not part of the NHS.


    The survey is being carried out by Healthweatch Trafford, however if you are not a resident of Trafford please continue to fill out the survey and the results will be passed on to your local Healthwatch. If you would like to know more about your local Healthwatch, click here to find which covers your area.


    You do not have to answer every question (although you do have to answer question 1) however the more information we can gather, the more accurate our report can be and the clearer the picture of how health services are serving the ME/CFS community we can build.

    Please pass this on to anybody you think it might be relevant to.
     
    Last edited by a moderator: Jan 17, 2019
    MEMarge, rvallee and andypants like this.
  10. Suffolkres

    Suffolkres Senior Member (Voting Rights)

    Messages:
    1,341
    Have heard back from Charles on this

    Have replied,


    Thanks for that feedback Charles,

    There is the issue of the current NICE chair request, but also the fact that existing and recent patient experience feedback/surveys is/appears not to be formally feed into the NICE process?

    It appears that vital existing info (and specifically on GET/CBT) which has already repeatedly been drawn to the attention of NICE in stakeholder submissions in January and in May (by Me!) has not been feed in yet or acknowledged.


    That should be posted out to Peter Barry and Baroness Finlay.


    That info should go in with and supplement the work you are doing in my view. It will make the process more objective, robust and credible.


    I am merely suggesting that links with Healthwatch England are forged now before the GDC meet in earnest in Jan Feb and March.

    This info will support and validate the lay reps personal experiences and their collective understanding from other groups and organisations ahead of this process.
     
  11. Suffolkres

    Suffolkres Senior Member (Voting Rights)

    Messages:
    1,341
    MEMarge, adambeyoncelowe and Tilly like this.
  12. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

    Messages:
    2,642
    Interestingly, there is a report from Healthwatch Trafford here: https://healthwatchtrafford.co.uk/our-reports/ (scroll down)

    ETA: I realise I didn't refresh the post before publishing (or was it the thread merge?), so I missed all these replies. Ignore me.
     
    Last edited: Jan 17, 2019
    Unable likes this.
  13. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    10,257
    Location:
    UK West Midlands
    I don’t know to what extent work done in one health watch team has any impact elsewhere in the country. I think there are possibly some examples of ME groups having some engagement with healthwatch - Sheffield?? But probably tied tothe presence or absence of effective local ME support group who engage in advocacy ie a total lottery dependent on having enough determined people with ME with a bit of energy to do something. If it’s only a couple of people with no healthy support it’s very hard to get anything done beyond posting on Facebook.
     

Share This Page