Glasgow: Holistic Chronic Fatigue Syndrome/ME service

Andy

Retired committee member
Not a recommendation.
This is a purely therapeutic programme and only patients who have undergone appropriate investigations and have been diagnosed with CFS/ME are usually put into the care of the CFS/ME team.

Patients with severe fatigue associated with a long term chronic condition get a similar (integrative care) assessment but not by a member of the CFS/ME team. However they will also access a unique personal package of care as a result of the integrative care assessment.

MBCT is useful in long term chronic conditions, anxiety and depression and addiction.

Our practitioners are qualified in Integrative Care approach and MBCT/MBSR

First there is a meeting with a member of the Holistic/CFS/ME team (up to 90 mins)

During this session we discuss how the condition impacts on all areas of the patient’s life, emotional, social, spiritual, physical and financial, and produce a unique package of therapies for that individual with their input so that a timeline of care can be produced eg. A patient may initially access a self-help education programme or a physiotherapy assessment, followed by one or two complementary therapies eg acupuncture, homeopathy and ending with a course of MBCT if the programme suitable for the candidate. As patients with CFS/ME can have a wide range of symptoms and depth of fatigue, one plan cannot suit every case. That is why our unique person-centred approach bases the therapy on their unique physical, mental and emotional state.
https://www.nhsggc.org.uk/patients-.../holistic-chronic-fatigue-syndromeme-service/

The other treatments the Centre offers are equally impressive...

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Do you have experience of the NHS 'Holistic Chronic Fatigue Syndrome/ME service' in Glasgow?

We have recently heard from one dissatisfied patient who was referred to the service, but we haven't heard other reports for some considerable time and understand provision has been/is being cut.

If you have experience of this NHS service in Scotland, please let us know. If you don't want to share your comment publicly, then either send a message or drop me an email: russell.fleming@meassociation.org.uk
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https://www.facebook.com/meassociation/posts/1986405091417139

 
It may be a bit weird but the one that makes me raise ye olde eyebrow is... mistletoe therapy?

I'm also really keen to hear what they can tell me that helps my financial situation. No, really, please, do tell.
 
I think this demonstrates just how much of a myth it is that the NHS is entirely evidence based. In the area of therapist-delivered treatments it continues to be the case that anything goes. They sort of slip in unnoticed under the door. And of course CBT and GET are part of this. What is unusual about CBT and GET for ME is that people have actually tried to show they work and published in what are otherwise scientific journals.
 
I think this demonstrates just how much of a myth it is that the NHS is entirely evidence based. In the area of therapist-delivered treatments it continues to be the case that anything goes. They sort of slip in unnoticed under the door. And of course CBT and GET are part of this. What is unusual about CBT and GET for ME is that people have actually tried to show they work and published in what are otherwise scientific journals.

And then, NHS would prefer to fund alternative medicine/ therapies because they cost much less than real medicine and real research that develops evidence-based treatments. And then there is a demand for alternative treatments, from patients believing that natural treatments are better and holistic is better, and that all the chemicals is bad for you and pharma is ‘crooked’.

Sending ‘MUPS’ patients to these clinics suits them NHS and drs who want an easy life just fine.
 
Still the most excruciatingly frustrating thing is that is un-blinded patient report trials of homeopathy are widely known to be unreliable junk but at the same time un-blinded patient report trials of CBT/GET are standard practice robust trials with low risk of bias.
 
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