Compilation of ME articles in 2022

[Kalliope]

Here's a compilation of the largest ME articles mentioned in the weekly news brief throughout the year.

This is the fourth year in a row we've had such an overview.

In 2019 it was 10 articles that made the list.
In 2020 it was 46.
In 2021 it was 99.
This year it's 107.

Last year there was a big jump in numbers due to Long Covid and the NICE guidelines. This year it's still a lot due to long Covid. I've also included more local and international news outlets than the first year, but am still pretty sure we're seeing an upward trend of articles about ME in media.


January

• Medscape Fast Five Quiz: Chronic Fatigue Syndrome (Myalgic Encephalomyelitis)
• PBS Your Fantastic Mind: “Long Covid and Making of a Brain Surgeon"
• The Times Could this scientist have the answer to long Covid?
• Rolling Stone What the Long Covid Numbers Aren’t Telling Us

February

• The Guardian The great gaslighting: how Covid longhaulers are still fighting for recognition
• The New York Times How Long Covid Exhausts the Body
• Klassekampen Savnet: Emilie (Missing: Emilie)
• National Geography How COVID-19 can harm pregnancy and reproductive health

March

• Klassekampen Leiter på cellenivå (Searching on cell level)
• TIME Researchers Are Getting Closer to Understanding Long COVID. But Treatments Are Likely Still a Ways Off
• Klassekampen Tilbudene gjør dem sykere (The treatments makes them sicker)
• Scottish Legal News David J Black: PACE-gate. Have we been Waddelled?
• 7 news Aussie ‘ray of sunshine’ left in 'zombie-like state’ shared agony of being ‘unable to say goodbye'
• The Washington Post Long Covid could change the way researchers study chronic illness
• ABC Australia How long COVID is putting the spotlight on chronic fatigue syndrome
• BBC Long Covid revisited
• ABC News Researchers probe ‘astounding’ links between long-COVID and chronic fatigue syndrome
• Medscape Covid’s ’Silver Lining’: Research Breakthroughs for Chronic Disease, Cancer, and the Common Flu
• ABC News Audio: Doctors report long COVID and MECFS similarities
• Coda The medical establishment gaslights doctors, insisting long Covid is ‘psychological’ by David Tuller
• WebMD Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): The Need to Raise Awareness
• Scottish Legal News David J Black: Welcome to the Machine
• El Pais Ingrid y Jorge, la gran historia de amor del pop español (Ingrid and Jorge, the great love story of Spanish pop)
• ScienceNorway What is going on in the bodies of ME/CFS patients?
• Independent Australia Disability advocates condemn neglect of chronic fatigue sufferers
• news.com.au ‘Don’t have this treatment for long Covid’
• Montreal Gazette The link between long COVID and a medical mystery

 

[Kalliope]

April

• SRF Das Chronische Fatigue-Syndrome - ein Albtraum für Betroffene (The Chronic Fatigue Syndrome - a nightmare for sufferers)
• Göteborgs-Posten Benjamin blir sjuk av att ta en promenad (Benjamin becomes ill by taking a walk)
• Göteborgs-Posten Postcovid kan ge upprättelse till ME-sjuka (Post Covid can give relief to ME sufferers)
• Tidningen Ångermanland “Jag får kämpa jättehårt för att klara av mammalivet” - Madelenes vardag raserades av ME (I have to fight very hard to cope with motherhood” - Madelene’s everyday life was destroyed by ME)
• TV4 Ny forskning: Snart kan det finnas ett test som visar om du har ME (New research: Soon there may be a test for ME)

May

• The Times Sajid Javid promises radical action for patients debilitated by ME
• The Times My daughter couldn’t be saved but there’s hope for other ME patients
• The Times Relative’s suffering triggered Sajid Javid’s ME crusade
• Independent I was raised by a mother who was battling ME - it’s not just ‘being tired’, it’s a devastating, life-defining disease
• Daily Mail Hope for 250,000 ME patients as Sajid Javid promises radical new approach to tackling the ‘incredibly disabling condition"
• BMA Known unknowns, and as yet medically unexplained diseases
• Gloucestershire live Elderly woman bedridden for 26 years due to ME hits out at those who call those affected lazy
• Newry Democrat Join Joan and show your support this World ME Day
• Otago Daily Times Long Covid link presents and opportunity: expert
• RNZ How to tackle the Long Covid threat, and how not to
• BMJ NICE stes out steps NHS must take to implement ME/CFS guidelines
• Montreal Gazette Quebec ME/CFS patients deserve access to new long-COVID clinics, advocates say
• Politika Хронични умор као последица короне (Chronic fatigue as a consequence of corona)
• The Times Sajid Javid rethinking ME after young relative’ battle
• BMJ Health secretary pledges more ME/CFS research as he reveals that relative has condition
• Woman’s Hour (…)Sean O´Neill on his late daughter’s ME
• Der Spiegel Man kann sein Leben verlieren, ohne zu sterben (You can lose your life without dying)
• Upsala Nya Tidning “Sjukvården har gjort ME-patienter sjukare” Health care has made ME patients deteriorate

June

• iNews ‘Doctors need to start believing us’: This is what ME patients say Sajid Javid needs to change

July

• TV2 Kommunen nekter å betale for det legen kaller “deres eneste håp” (The municipality refuses to pay for what the doctor says is “their only hope"
• Freakonomics M.D. Could Long Covid Help Treat Other Chronic Illnesses?

 

[Kalliope]

August

• Medscape Treatments Explored to Ease Post-Viral Symptoms of ME/CFS and Long COVID
• Medscape Increasing Data Link ME/CFS, Long COVID, and Dysautonomia
• Medscape Clinicians Can Help People With Severe ME/CFS, Even Unseen
• wbur To solve the mystery of long COVID, researchers look to an older disease
• ScienceLine Physical therapists have a lot to learn about post-viral fatigue in the wake of a ’tsunami’ of long COVID patients
• Australia ABC News Queensland researchers find overlap in pathology of long COVID and chronic fatigue syndrome
• New Zealand Geographic Warren Tate investigates unexplained illnesses
• WebMD Long COVID Mimics Other Post-Viral Conditions

September

• TV2 Professor: - Veldig lovende resultater for ME-syke (Professor: Very promising results for severe ME sufferers)
• New Zealand Stuff Kiwis with chronic fatigue 'extremely disappointed’ official won’t reclassify illness
• GRID How long covid studies could help scientists solve the long-unsolved mystery of post-viral illnesses
• Science Understanding myalgic encephalomyelitis
• Medscape Post-COVID Fatigue, Exercise Intolerance Signal ME/CFS
• NRK ME-syke Aurora (25) er tvunget til å bo på sykehjem (ME sufferer Aurora (25) is forced to live in an old people’s home)
• The Scottish SunI was healthy and active before illness left me bedridden - it’s exhausting to be alive
• WebMD Long COVID Was a Preventable Tragedy. Some of Us Saw It Coming
• KevinMD Why psychological explanations for long COVID are dangerous
• Daily Record £6m needed to tackle ME crisis as patients demans actions over increasing long covid fears
• B.T. Sundhedsstyrelsen afviser patienters oplevelse: ‘Det er simpelthen ikke rigtig’ (The Danish Health Authority dismisses patient’s experience: ‘It’s simply not true’)
• The Atlantic Long COVID Has Forced a Reckoning for One of Medicine’s Most Neglected Diseases
• Devon Live Exeter mum’s heartbreak as daughter, 27, loses severe ME battle
• The Times Chronic Fatigue Syndrome patient told ‘You’re making it up’

October

• wbur On Point How Chronic Fatigue Syndrome is helping doctors understand long COVID
• B.T. Bendt gik fra overlæge til svigtet patient: ‘Det er noget forbandet svineri’ (Bendt went from being a senior doctor to a neglected patient: ‘It’s absolutely awful’)
• Irish Times ME: 'I spend 20 hours a day lying down. I have four upright hours in the day'
• wpr Medically maligned Chronic Fatigue Syndrome holds clues to long Covid
• San Fransisco Chronicle A long-hidden disease is pulled from the shadows by its cousin, long COVID
• The Guardian Can long Covid research unlock other great medical mysteries of our time?
• TV2 Lå bortgjemt og hjelpeløs - reddet av kreftbehandling (Was stowed away and helpless - saved by cancer treatment)
• TV2 - Pasientene brytes ned av systemet (The patients are broken down by the system)
• The New York Times Protesters So Ill, They Couldn’t Get Arrested
• The BMJ Activists demand more funds for ME research
• The Daily Telegraph Could long Covid hold the key to curing chronic fatigue?
• TV2 Høyre krever at rystende forskningsfunn følges opp (Høyre (political party) demands that shocking research findings are followed up)

 

[Kalliope]

November

• The Sydney Morning Herald We failed Australians with chronic fatigue. Will we do the same with long COVID?
• BMJ Long Covid - What can we learn about the cause and management from ME/CFS?
• Los Angeles Times How patients wrote ’the first textbook’ on long COVID
• Medscape ME/CFS and Long COVID: Q&A With the CDC’s Dr Jennifer Cope
• Sky News How long COVID ruined my life, from crushing fatigue to brain fog
• Enable Magazine Decoding ME - Behind the scenes of the world’s largest ME and CFS study
• Mirror ‘Largest genetic study of ME could finally provide answers around the condition’
• NRK Ber helsebyråden gripe inn og hjelpe Aurora: - Burde satt inn alle kluter (Asks the health council to take action and help Aurora: - Should have been doing everything in their power)
• Daily Record Young Scots teacher left unable to read books after crippling log covid battle

December

• The Guardian A catalogue of losses: what chronic fatigue syndrome took away from my life
• Healthy Debate Groundbreaking research into ME/CFS a pandemic ’silver lining'
• Popular Science What patients find a long COVID clinics: rejection, outdated therapies, and unanswered questions
• Time It Isn't Just Long COVID. Post-Viral Illnesses Are More Common Than You Think
• Dagens Medicin Fra overlæge med fuld fart på karrieren, til sengebundet døgnet rundt (From senior doctor with a career, to bedbound 24/7)
• iNews Living with chronic fatigue syndrome: ‘I used to climb mountains, now I need a stair lift because of ME'
• Forskningno Forsker om konflikten rundt ME: - Nærmest krigstilstand (Researcher about the ME conflict: - Nearly a state of war)
• SELF What does it mean to really, truly rest?
• ABC News Finding my way out of the fog
• Newsweek Long Haul COVID: Like ‘demon had hijacked my nervous system’ says author
• Fortune Well COVID isn’t just infecting you - it could be reactivating viruses that have been dormant in your body for years

 

[Trish]

Thank you @Kalliope. Quite a collection this year.

 

[ahimsa]

@Kalliope, let me add my thanks, too!

I appreciate your hard work and I'm happy to see the number increasing. Bookmarking for future reference.

 

[Andy]

For reference, here are the previous compilations.

Compilation of ME articles in 2021
Compilation of the biggest ME articles in 2020
Compilation of best and/or most read ME articles in 2019