Co-creating a social science research agenda for Long Covid, 2025, Cousins, Alwan, Dalton, Sherwood+

[SNT Gatchaman]

Co-creating a social science research agenda for Long Covid
Cousins, Oonagh; Jokela-Pansini, Maaret; Alwan, Nisreen A; Barnard, Ella; Dainow, Jo; Dalton, Caroline; Davies, Gail; Faghy, Mark A; Gilmour, Eileen; Patel, Ian; Sherwood, Ondine; Westerhof, Lotus; Greenhough, Beth

INTRODUCTION
Our objective was to understand how social scientific research could best address the needs and concerns of patients, families, carers, healthcare professionals, academics, private and public sector professionals, and volunteers from Long Covid charities and support groups and people with lived experience of Long Covid. We worked with different stakeholders to develop a list of research priorities that particularly focused on social science as this is where our collective expertise lies, but similar methods could also be used to set research priorities in the natural sciences, medicine or the humanities.

METHODS
We used purposive sampling and conducted two online surveys. The first online survey (N = 57) asked participants to identify their top five questions of concern, which resulted in a list of 253 questions. These questions were then consolidated, refined and edited down to 55 questions, categorized by topic. In the second survey (N = 66), we asked participants to select and rank their top 10 questions from this refined list. The final output was a ranked list of nine questions based on those prioritized by at least 50% of the respondents.

RESULTS
Nine research questions were developed concerning (i) treatments, therapies, and strategies; (ii) financial support; (iii) repeated reinfections; (iv) training of healthcare professionals; (v) mental health impact; (vi) future of research funding; (vii) airborne transmissions of COVID-19; (viii) developing therapeutics informed by patients experiences; and (ix) socioeconomic impacts of Long Covid. Many of the issues raised mirror those discussed in previous work in the UK and internationally, but additional novel themes emerged, underscoring the value of this collaborative approach.

CONCLUSION
Our survey revealed the value of including the voices of diverse individuals affected by Long Covid and those working in this area and highlighted priorities for social science in the field of Long Covid research.

Web | DOI | PDF | Frontiers in Public Health | Open Access

 

[Utsikt]

I don’t understand the purpose of this research. There is nothing new here, and the people who are responsible for the failure to address the concerns couldn’t care less about this article.

CONCLUSION
Our survey revealed the value of including the voices of diverse individuals affected by Long Covid and those working in this area and highlighted priorities for social science in the field of Long Covid research.

How did it reveal the value of including the voices of the individual affected by LC? Anyone with a couple of hours to spare and a clear mind could have come up with these topics.

If you want to create change, you need to demonstrate why change would be in the interest of those with the power to make the change happen. There is nothing here that will help convince them.

 

[Yann04]

Here are the nine questions. Some of them are decent, some of them a bit disappointing.

Interesting to see Oonagh Cousins on the author list. She’s that Oxford student rower who went on the BBC and bashed the LP.

 

[Trish]

Interesting to see Oonagh Cousins on the author list. She’s that Oxford student rower who went on the BBC and bashed the LP.

She is also one of the leaders of #ThereforME and last I heard has a part time job doing social science research on ME/CFS/LC.