Clinic offering Perrin Technique - one for trading standards(?)

[Sly Saint]

This clinic is offering the Perrin Technique for ME/CFS:
"
The Perrin Technique
We believe that Chronic Fatigue Syndrome / Myalgic Encephalomyelitis and Post Viral Fatigue Syndrome is a physical disorder that leads to a build-up of toxins within the brain and the spine. The Perrin Technique has been developed to diagnose CFS/ ME by identifying definite physical signs and to treat the disorder by improving drainage of these poisons from the central nervous system.

Raymond Perrin's research at Salford University in conjunction with the University of Manchester has provided strong evidence that an important component of CFS / ME involves a disturbance of lymphatic drainage of the brain and muscles. The osteopathic treatment developed by Raymond Perrin has been statistically validated in both clinical trials, emphasising the need to focus future research on the biomechanical aspects of this disorder."

If I remember correctly, the 'research' did no such thing or is this just clever phrasing?
It goes on to say:

"Further investigation has identified a probable cause of the nervous system being overloaded due to a build-up in toxins in the fluid around the brain and the spinal cord. Some of the poisons caused by infection or inflammation in the head or spine flow through perforations in a bony plate (cribriform plate) just above the nasal sinuses into the lymph ducts of the face and neck. The toxins are also meant to drain down the spinal cord and out into the lymph ducts lying along the spine. In a CFS / ME sufferer these normal drainage points are congested."

"Eventually with no poisons affecting the brain, the sympathetic nervous system begins to function correctly, and providing the patients do not overstrain themselves their symptoms should gradually improve and in time some patients become totally symptom-free."

again I don't recall any proof of this in the research.

eta: https://www.worthingosteopathicwellbeing.co.uk/ME-treatment

 

[arewenearlythereyet]

Perhaps one for Charles S at the MEA?

 

[Andy]

Which clinic @Sly Saint ?

 

[Trish]

As far as I remember the only ''validation'' was a very poor quality comparison to see if Perrin trained people could diagnose ME without asking questions by pressing on some lymph nodes. Given that pwME often report sore or swollen lymph nodes, that seems kind of obvious - and pointless, since you still have to ask the right questions to confirm the diagnosis.
The 'treatment' has, as far as I know, not been clinically tested. I could be wrong.

And I note that they claim slow improvement provided patients don't over strain themselves, which sounds like pacing to me.

 

[Little Bluestem]

I had lymphatic drainage massage once and it made me feel better temporarily. I was on vacation at the time, so could not repeat it. I can't imagine this would be a cure, but it might reduce symptoms. I should also add that lymphatic drainage massage is exactly the same thing as Perrin treatments, but they both address the lymphatic system.

 

[adambeyoncelowe]

A good massage might be therapeutic, but I suspect many patients can't tolerate them (even the gentlest forms).

 

[Trish]

I've emailed the clinic linked to here and asked for links to published research showing efficacy of the Perrin technique.

 

[Sly Saint]

same claims and worse being made by this clinic:

The Perrin Technique is a specialist osteopathic diagnostic and treatment protocol developed specifically to diagnose and treat ME/CFS.

Dr Raymond Perrin has developed the technique over the past 30 years which has undergone numerous research trials, most recently in an NHS trial.

The Perrin Technique has also seen some benefits to patients suffering with Fibromyalgia and similar Systemic Exertion Intolerance Diseases as they are acknowledged as being on the same 'spectrum'.

Diagnosis & Prognosis

The Perrin Technique™ gives an immediate diagnosis after the patient's first physical examination, rather than the diagnosis of ME and/or CFS being a process of elimination, as seen in mainstream medicine.

The Perrin Technique determines ME is a result of different stress factors on the body cause an overstrain of the sympathetic nervous system leading to lymphatic breakdown and toxic build-up.

Dr Perrin has discovered definite physical signs common to all ME and CFS sufferers and he has provided a small article on the physical signs of ME/CFS - which you can read here.

https://www.thevillageosteopaths.co.uk/the-perrin-technique

 

[Invisible Woman]

A good massage might be therapeutic, but I suspect many patients can't tolerate them (even the gentlest forms).

Yep. I used exercise regularly and treat myself to a massage every month or so.

Since I got sick massages are just far too much even if they're lovely at the time, I'm bedbound feeling vile for weeks after. .

I have tried the Perrin technique, though not at this clinic. It made me much, much worse. We pulled the plug when my legs went from under me in the kitchen and I couldn't stand up or even get myself onto all fours. I had always felt awful in the few days following the technique, but with each appointment it got worse.

I'd love if all "treatments" for ME had to come with a warning -
May just as easily make you worse as make you better
Remission ≠ recovery