Charting a Path Toward New Treatments for Lyme Infection-associated Chronic Illnesses

[Dolphin]

Source: National Academies Sciences Engeneering Medicine (NASEM)
Date: May 9, 2025
URL: https://mailchi.mp/02032405cbfd/cha...r-lyme-infection-associated-chronic-illnesses

Charting a Path Toward New Treatments for Lyme Infection-associated Chronic Illnesses
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May 9, 2025 | 11 a.m. to 12 p.m. ET

Join us on May 9 for the virtual public release webinar of a new report assessing the current evidence base for treatment of Lyme infection-associated chronic illnesses (IACI) and identifying research priorities and new opportunities. Around 10-20% of people who contract Lyme disease, the most common tickborne disease in the U.S., develop persistent, often debilitating symptoms such as chronic pain, fatigue, and cognitive dysfunction. These symptoms can last months to years and are common to other IACI such as Long COVID and myalgic encephalomyelitis/chronic fatigue syndrome.

The Steven & Alexandra Cohen Foundation asked the National Academies to convene a committee of experts to assess the evidence for disease mechanisms, diagnoses, and treatments of Lyme IACI and illuminate a pathway for the development of new treatments. At the webinar, members of the committee will discuss the resulting report’s key messages and recommendations and answer questions from the audience.

Register Now https://events.nationalacademies.or...r-lyme-infection-associated-chronic-illnesses

 

[Nightsong]

"Research Funders Should Prioritize Finding Treatments to Ease Symptoms of Chronic Illnesses Associated with Lyme Disease, Not Wait for Certainty on Cause, Says New Report" (May 8, 2025):

https://www.nationalacademies.org/n...t-wait-for-certainty-on-cause-says-new-report

The report itself:

National Academies of Sciences, Engineering, and Medicine. 2025. Charting a Path Toward New Treatments for Lyme Infection-Associated Chronic Illnesses. Washington, DC: The National Academies Press. https://doi.org/10.17226/28578.

 

[rvallee]

The report looks very similar to the 2015 Beyond ME report. Loads of references to LC and ME/CFS. The general substance seems very similar, showing how despite claims by some over the years that the Beyond report changed things, nothing has actually changed.

Like every single report over the last 40 years. Well, except the very first one, I guess. But the one constant is that nothing ever changes. So it keeps getting reported. We regularly see such updated reports. They always report the same: nothing's happened, by choice.

We got nowhere with the old regime at the NIH. Right now there is pretty much no functioning government in the US, so it's impossible to say what steps will be taken, as this appears target at HHS, the department led by RFK Jr. For sure what the NIH has done with it, and the appalling failure of the intramural study doesn't inspire confidence in the old guard, and the new guard is even worse.

If I have some energy another day I may peek a bit deeper into it. It could be useful to crunch it with one of the better LLMs, get the salient details.