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Bateman Horne Center - Community Resources, 2019

Discussion in 'General ME/CFS News' started by Trish, Dec 31, 2019.

  1. Trish

    Trish Moderator Staff Member

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    From the Bateman Horne Center website:

    Each week has downloadable PDF resources.
  2. Denise

    Denise Senior Member (Voting Rights)

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    The health assessment asks about hours of upright vs feet up activity, it does not ask about hours of cognitive function and only asks in general about brain fog. I find it frustrating that describing cognitive function is not given more importance.

    The pdf about how to communicate with HCPs suggests that if you don't feel you are being treated appropriately by an HCP you should just find another one. It's a tough situation. In an ideal world, we could do that without running the risk of being thought of as "doctor shopping". And starting over with a new HCP (even one who understands/believes us) takes a lot of effort. I guess I am just grumbling about the lack of fair-minded HCPs.

    ETA - I am glad BHC is working on these sorts of resources though.

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