Kalliope
Senior Member (Voting Rights)
good and long article on another neglected aspect of ME/CFS and LC
quotes:
For millions of people with long COVID around the world, the pandemic is not just a minor nuisance or a bad memory but a daily waking nightmare. The disabling chronic illness is taking a devastating toll on patients’ health, stopping many from working, exercising, socialising and living independently. But long COVID is also snuffing out some patients’ dreams of having children, and complicating pregnancy and parenthood for those who choose to conceive despite their symptoms and doubts about when or if they will recover.
...
There’s also scant research on pregnancy and long COVID, ME/CFS and POTS, which can make family planning even harder for patients — or at least those who are in a position to consider having a baby. What if pregnancy reduces your already low baseline — not an unreasonable question given up to 10 per cent of patients report that pregnancy triggered their ME/CFS or POTS. Could your illness affect your child’s health? Will you fully recover from the stress and strain of labour? What about caring for a newborn, breastfeeding, sleep deprivation?
In some studies roughly equal numbers of ME/CFS patients reported that their symptoms improved, stayed the same or got worse during pregnancy, with no clear reasons as to why. But the overall lack of data means there are no evidence-based guidelines, leaving patients, their partners and healthcare providers unable to make informed decisions.
https://www.abc.net.au/news/2024-12...-snuffing-dreams-children-pregnancy/104687860
quotes:
For millions of people with long COVID around the world, the pandemic is not just a minor nuisance or a bad memory but a daily waking nightmare. The disabling chronic illness is taking a devastating toll on patients’ health, stopping many from working, exercising, socialising and living independently. But long COVID is also snuffing out some patients’ dreams of having children, and complicating pregnancy and parenthood for those who choose to conceive despite their symptoms and doubts about when or if they will recover.
...
There’s also scant research on pregnancy and long COVID, ME/CFS and POTS, which can make family planning even harder for patients — or at least those who are in a position to consider having a baby. What if pregnancy reduces your already low baseline — not an unreasonable question given up to 10 per cent of patients report that pregnancy triggered their ME/CFS or POTS. Could your illness affect your child’s health? Will you fully recover from the stress and strain of labour? What about caring for a newborn, breastfeeding, sleep deprivation?
In some studies roughly equal numbers of ME/CFS patients reported that their symptoms improved, stayed the same or got worse during pregnancy, with no clear reasons as to why. But the overall lack of data means there are no evidence-based guidelines, leaving patients, their partners and healthcare providers unable to make informed decisions.
https://www.abc.net.au/news/2024-12...-snuffing-dreams-children-pregnancy/104687860