16 July 2018 - Jennie Spotila blog - 'How to represent'

[Sasha]

Last month, I had my first chance to serve on an FDA Advisory Committee as a Patient Representative. I had a lot to learn about the drug under consideration, but I also learned how to use my individual perspective to represent a large group of people. As more researchers in ME try to engage with patients as partners, I have five lessons to help you use your personal ME experience to speak for us....]

Read the rest at: http://occupyme.net/2018/07/16/how-to-represent/

 

[Tom Kindlon]

 

[Sasha]

That was the quote that particularly struck me too, @Tom Kindlon!