“When postviral goes viral”. Chapter in “How to be disabled in a pandemic” book

I haven't read the whole chapter, I've just skimmed it. It seems to be a thoughtful look at the experiences of people with ME/CFS and Long Covid, and the mixed feelings of people with ME/CFS who saw the long term effects of Covid coming and the mix of hopes of more solidarity and research funding, and fears that LC would take up all the attention and funding. It centres around #MEAction in New York as sources of photos and patients' stories.
 
It all seems to be free now here:
https://muse.jhu.edu/chapter/4154516

CONTENTS
  1. Foreword: Into the Pandemic’s Disability Hinterlands
  2. Ed Yong
  3. Introduction: How to Be Disabled in a Pandemic
  4. Mara Mills, Harris Kornstein, Faye Ginsburg, and Rayna Rapp
  5. PART I. LIVING WITH “DISPROPORTIONATE RISK”: POLICIES, INSTITUTIONS, AND CONGREGATE SETTINGS
  6.   1. “We Were Sick, and They Punished Us Even More”: Living through COVID-19 in New York State Prisons
  7. Tommaso Bardelli, Aiyuba Thomas, and Dylan Brown
  8.   2. Second-Class Noncitizens: The Impact of the COVID-19 Pandemic on Immigrants with Disabilities in New York City
  9. J.C. Salyer
  10.   3. Housing as Health Care: Shelter and Safety across Decades
  11. Salonee Bhaman
  12.   4. From Inaccessibility to Pathologized Mobility on New York City’s Public Transit: Finding Affordances in a Pandemic
  13. Yan Grenier
  14.   5. Vent: Making and Debating the New York State Ventilator Allocation Guidelines
  15. Mara Mills
  16.   6. High Stakes Schooling: Risk, Protection, and the Education of Disabled Children in a Pandemic
  17. Alexandra Freidus, Rachel Fish, and Erica O. Turner
  18.   7. Care Work, Creativity, and Unplanned Survival in the Time of COVID
  19. Faye Ginsburg and Rayna Rapp
  20. PART II. DISABILITY COMMUNITIES: EXPERTISE, ACTIVISM, AND SOLIDARITY
  21.   8. When Postviral Goes Viral: Myalgic Encephalomyelitis, Long COVID, and Pandemic Déjà Vu
  22. Harris Kornstein and Emily Lim Rogers
  23.   9. Blind New Yorkers, Online and Offline, during the Pandemic
  24. Bojana Coklyat and Chancey Fleet
  25. 10. The Everyday Lives of Qilao during the Pandemic
  26. Shuting Li
  27. 11. “We Want Cop-Free Communities”: Reflections on Anti-Asian Violences and Safety
  28. Mon Mohapatra, Heena Sharma, Yves Tong Nguyen, and Rachel Kuo
  29. 12. Mental Health and Black Futurity: Life, Birth, and Caregiving in Double Pandemics
  30. Nadia Mbonde
  31. 13. Disability Justice, Material Needs, and Mutual Aid: Lessons from Autistic Communities during the Pandemic
  32. Cara Ryan
  33. 14. Making Art in Bed
  34. Emily Watlington
  35. 15. Reflections on Being a Disability Reporter during the Pandemic
  36. Amanda Morris
  37. Coda: Toward a Disability Future
  38. Judith Heumann
  39. Appendix A. New York City Pandemic and Disability Activism Timeline
  40. Appendix B. Keywords from the Pandemic: A Disability Glossary
  41. Acknowledgments
  42. About the Editors
  43. About the Contributors
  44. Index
  45. Color insert
 
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