“When postviral goes viral”. Chapter in “How to be disabled in a pandemic” book

Discussion in 'General ME/CFS news' started by Dolphin, Jan 13, 2025.

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  1. Dolphin

    Dolphin Senior Member (Voting Rights)

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  2. ahimsa

    ahimsa Senior Member (Voting Rights)

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    shak8 Senior Member (Voting Rights)

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    Foreward by Ed Yong.

    Supported by a grant by National Science Foundation (US).
     
  4. Dolphin

    Dolphin Senior Member (Voting Rights)

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  5. Trish

    Trish Moderator Staff Member

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    I haven't read the whole chapter, I've just skimmed it. It seems to be a thoughtful look at the experiences of people with ME/CFS and Long Covid, and the mixed feelings of people with ME/CFS who saw the long term effects of Covid coming and the mix of hopes of more solidarity and research funding, and fears that LC would take up all the attention and funding. It centres around #MEAction in New York as sources of photos and patients' stories.
     
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  6. Dolphin

    Dolphin Senior Member (Voting Rights)

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    It all seems to be free now here:
    https://muse.jhu.edu/chapter/4154516

    CONTENTS
    1. Foreword: Into the Pandemic’s Disability Hinterlands
    2. Ed Yong
    3. Introduction: How to Be Disabled in a Pandemic
    4. Mara Mills, Harris Kornstein, Faye Ginsburg, and Rayna Rapp
    5. PART I. LIVING WITH “DISPROPORTIONATE RISK”: POLICIES, INSTITUTIONS, AND CONGREGATE SETTINGS
    6.   1. “We Were Sick, and They Punished Us Even More”: Living through COVID-19 in New York State Prisons
    7. Tommaso Bardelli, Aiyuba Thomas, and Dylan Brown
    8.   2. Second-Class Noncitizens: The Impact of the COVID-19 Pandemic on Immigrants with Disabilities in New York City
    9. J.C. Salyer
    10.   3. Housing as Health Care: Shelter and Safety across Decades
    11. Salonee Bhaman
    12.   4. From Inaccessibility to Pathologized Mobility on New York City’s Public Transit: Finding Affordances in a Pandemic
    13. Yan Grenier
    14.   5. Vent: Making and Debating the New York State Ventilator Allocation Guidelines
    15. Mara Mills
    16.   6. High Stakes Schooling: Risk, Protection, and the Education of Disabled Children in a Pandemic
    17. Alexandra Freidus, Rachel Fish, and Erica O. Turner
    18.   7. Care Work, Creativity, and Unplanned Survival in the Time of COVID
    19. Faye Ginsburg and Rayna Rapp
    20. PART II. DISABILITY COMMUNITIES: EXPERTISE, ACTIVISM, AND SOLIDARITY
    21.   8. When Postviral Goes Viral: Myalgic Encephalomyelitis, Long COVID, and Pandemic Déjà Vu
    22. Harris Kornstein and Emily Lim Rogers
    23.   9. Blind New Yorkers, Online and Offline, during the Pandemic
    24. Bojana Coklyat and Chancey Fleet
    25. 10. The Everyday Lives of Qilao during the Pandemic
    26. Shuting Li
    27. 11. “We Want Cop-Free Communities”: Reflections on Anti-Asian Violences and Safety
    28. Mon Mohapatra, Heena Sharma, Yves Tong Nguyen, and Rachel Kuo
    29. 12. Mental Health and Black Futurity: Life, Birth, and Caregiving in Double Pandemics
    30. Nadia Mbonde
    31. 13. Disability Justice, Material Needs, and Mutual Aid: Lessons from Autistic Communities during the Pandemic
    32. Cara Ryan
    33. 14. Making Art in Bed
    34. Emily Watlington
    35. 15. Reflections on Being a Disability Reporter during the Pandemic
    36. Amanda Morris
    37. Coda: Toward a Disability Future
    38. Judith Heumann
    39. Appendix A. New York City Pandemic and Disability Activism Timeline
    40. Appendix B. Keywords from the Pandemic: A Disability Glossary
    41. Acknowledgments
    42. About the Editors
    43. About the Contributors
    44. Index
    45. Color insert
     
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