Link (26 February 2025)
Key facts
Most patients with COVID-19 recover fully, but some develop post COVID-19 condition with medium- to long-term effects on one or more body systems.
Approximately 6 in every 100 people who have COVID-19 develop post COVID-19 condition.
While data are limited...
COVID 5 years later: Learning from a pandemic many are forgetting
Five years after SARS-CoV-2 surfaced, scientists reflect and look ahead to the next threat
https://www.science.org/content/article/covid-5-years-later-learning-pandemic-many-are-forgetting
(I added some line breaks and bolding...
Moved from News from Cochrane
https://iris.who.int/bitstream/handle/10665/378782/9789240097711-eng.pdf?sequence=1
page 8
The Technical Advisory Group (TAG) for Development of Best Practices for Clinical Trials was constituted through a public call for nominations.
16 names including Karla...
Rampant COVID Poses New Challenges in the Fifth Year of the Pandemic
“We’re still in a pandemic,” says a lead COVID official with the World Health Organization
https://www.scientificamerican.com/article/rampant-covid-poses-new-challenges-in-the-fifth-year-of-the-pandemic/
(some extra line...
I got my patient summary today and rather depressingly it states I have "chronic fatigue syndrome" (xa01f). Which the more I learn about the history of the term the more I find outright offensive.
So
1 what does "xa01f" mean ? and
2 can I get it changed on my patient record to read severe...
See also this thread:
International: World Health Organization News (news relevant to ME/CFS, Long Covid and related conditions)
____________
Today, the World Health Organization has published a consensus definition and guidelines for Long Covid...
Yesterday, the WHO approved my February 2020 proposal for removal of "Benign" from "Benign myalgic encephalomyelitis" for ICD-11.
See thread:
Updates on status of ICD-11 and changes to other classification and terminology systems
Post #443...
Moderator note.
This post has been copied and following posts moved from this thread:
Possibility of ME or PVFS after Covid-19
Big thanks to @Andy for posting this. I posted similar on Twitter and got very lucky
It's amazing and, hopefully, this will lead to serious action by the WHO.
Please see important update, today, in the thread:
Updates on status of ICD-11 and changes to other classification and terminology systems
https://www.s4me.info/threads/updates-on-status-of-icd-11-and-changes-to-other-classification-and-terminology-systems.3912/page-17#post-231239
https://www.bmj.com/content/368/bmj.m105?utm_source=twitter&utm_medium=social&utm_term=hootsuite&utm_content=sme&utm_campaign=usage
(paywalled, no sci-hub link as yet)
see also:
Retraction of WHO guidance on opioid use
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6933427/
I have been trying to get a better understanding of the development of the WHO ICD codes in relation to ME and CFS and although I haven't read it all am finding the document linked to on the Hummingbird site helpful.
There is a long and short version.
the contents of the long version are...
Access the papers
Using qualitative evidence synthesis to inform guideline scope and develop qualitative findings statements (led by Soo Downe)
Using qualitative evidence synthesis findings to inform evidence-to-decision frameworks and recommendations (led by Simon Lewin)
Using qualitative...
Article by Steven Salzberg
"A few days ago, a news story in the journal Nature reported that the World Health Organization, which is supposed to be devoted to improving the health and medical care of people around the globe, will for the first time endorse a belief system called "traditional...
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