tube feeding

  1. InitialConditions

    Open UK BACME tube feeding survey 2025, closes 30th September 2025

    BACME are currently conducting a survey exploring the experience of people living with ME/CFS in the UK who have required tube feeding at some point in their illness. A very small number of people living with ME/CFS develop nutrition related problems severe enough to be considered for tube...
  2. Sly Saint

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    This thread is for social media and general media items about people in the United Kingdom with both ME/CFS and severe problems in achieving adequate nutrition. Please avoid speculating about the health or other personal aspects of people mentioned. There is general discussion about severe...
  3. cassava7

    Digestion issue causing overexertion and severe weight loss

    I am bedridden with severe ME and am struggling to maintain my weight because digestion is very harsh on me. The more I eat throughout the day, the harder digestion becomes, so I cannot eat enough. I have lost a significant amount of weight over the last months, to the point that I have become...
  4. cassava7

    Jejunal feeding: when is it the right thing to do?, Paine et al, 2020

    (Bolding mine) The decision to commence jejunal feeding in patients with structural abnormalities, which prevent oral or intragastric feeding, is usually straightforward. However, decisions surrounding the need for jejunal feeding can be more complex in individuals with no clear structural...
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