seid

Tarjei Tørre Asprusten will be defending his thesis "Diagnosis of Chronic Fatigue Syndrome in Adolescents" for the degree of PhD 7th March 2022. Principal supervisor is prof. Wyller. Summary Diagnostic labels as Chronic Fatigue Syndrome (CFS), Myalgic Encephalomyelitis (ME) and Systemic...

The summary of the IOM report reads (p. 10, bolding mine): It is encouraging to note that progress already is being made in understanding the etiology, natural history, pathophysiology, and effective treatment of ME/CFS using a variety of physiological and molecular methods. Several large...

https://www.sciencedirect.com/science/article/pii/S1043661821000487

Chronic Fatigue Syndrome (Systemic Exertion Intolerance Disease; SEID; Myalgic Encephalomyelitis; ME/CFS) By Stephen Gluckman , MD, Perelman School of Medicine at The University of Pennsylvania Last full review/revision Apr 2020| Content last modified Apr 2020 Consumer Version...

ME/SEID would be definitionally appropriate on literal terminological grounds, if associated with superior diagnostic criteria, such as the CCC or ICC. This would appear to be an improvement vs stigma, accurate understanding etc. for NICE purposes and actually offer a solid measure to adopt...

Source: U.S. Federal Register Vol. 84, #24, p 1678-1690 Date: February 5, 2019 URL: https://www.federalregister.gov/documents/2019/02/05/2019-00636/schedule-for-rating-disabilities-infectious-diseases-immune-disorders-and-nutritional-deficiencies...

As reported in this Reddit thread, https://www.reddit.com/r/cfs/comments/a1y7mb/we_made_it_on_jeopardy/ this question was asked on the quiz show Jeopardy recently, "Systemic Exertion Intolerance Disease is an AKA for this syndrome?" A little bit of progress maybe?

I was surprised to find this article posted on the ME/CFS Australia (SA) Inc site: http://www.sacfs.asn.au/ Sep 18, 2018 by Ernie Schramayr Hamilton Spectator " Exercise leads to a release of “feel good” hormones that makes most people feel energized, clear headed, invigorated. ............"...

from Gabby Kleins blog: "A meeting took place on September 11 and 12, 2018 by the ICD-10 Coordination and Maintenance Committee. On September 12, Donna Pickett discussed a proposal for “chronic fatigue syndrome”. Dr. Lily Chu of the IACFS/ME called in with her approval of NCHS/CDC’s proposal...

"I must caution against the over-aggressive use of exercise programs, which can worsen symptoms." "It’s very frustrating, since it implies that a person’s physical symptoms are due to some weakness in his or her character." To Your Good Health: Chronic Fatigue Syndrome Has a New Name...

BMJ Paediatrics open: Systemic exertion intolerance disease diagnostic criteria applied on an adolescent chronic fatigue syndrome cohort: evaluation of subgroup differences and prognostic utility Objective Existing case definitions for chronic fatigue syndrome (CFS) all have disputed validity...

https://www.medscape.com/viewarticle/894622 (free account required to read) ME/CFS is such a confusing mess, even Medscape gets the name wrong :banghead:. Still, a decent brief video summary of the IOM (SEID) diagnostic criteria, and results of the recent ME/CFS summit in Salt Lake City. It...