Substack
Making sense of ME/CFS
Melvin Ramsay, the Royal Free Hospital outbreak, and the evolving understanding of ME.
Myalgic encephalomyelitis, 1955-1990 - by K. Johnstone (substack.com)
Royal Free Hospital
https://www.royalfree.nhs.uk/services/services-a-z/fatigue-service/chronic-fatigue-syndrome-treatment/
recommended reading still
Fatigue
Overcoming chronic fatigue: a self-help guide using cognitive behavioural techniques (Mary Burgess and Trudie Chalder)
Coping better...
Full title: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Organic Disease or Psychosomatic Illness? A Re-Examination of the Royal Free Epidemic of 1955
https://pubmed.ncbi.nlm.nih.gov/33375343/
On Royal Free website:
CFS/ME research
"This purpose of the PACE trial was to better understand the possible causes of chronic fatigue syndrome." Really? Since when?
https://www.royalfree.nhs.uk/services/services-a-z/fatigue-service/cfs-me-research/
(see also Graded exercise...
Taken from a blog originally from 2011 but the comments go on to 2018;
other comments:
in the interest of being equipoise, a more positive comment (although Dr Murphy knew that the patient was a medical student):
full blog here...
"In the following discourse I shall endeavour to shed light on how, and perhaps why, a serious disease has not been taken seriously for nearly half a century. The disease is Myalgic Encephalomyelitis. Many people think it is the same thing as Chronic Fatigue Syndrome but I shall also explain why...
This thread has been split from https://www.s4me.info/threads/bmj-pressure-grows-on-lancet-to-review-“flawed”-pace-trial.5444/page-6
They seem to play these word games all the time. I have been trying to work out the attitude to "hysteria". In their book Wessely, Hotopf and Sharpe say @p232...
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