research priority

  1. Dolphin

    2024: USA NIH NINDS ME/CFS Research Roadmap - now published

    Copied post News from NIH: NINDS is seeking feedback on ME/CFS Research Roadmap Priorities NINDS is seeking your input on the ME/CFS Research Roadmap priorities. The goal is to collect broad feedback from the public on the research priorities being developed by the Myalgic...
  2. Midnattsol

    Nothing About Us Without Us: Top 10 Research Priorities from Patients – A James Lind Alliance Project for PPI, 2023, Fryxelius et al

    Maybe not exactly research methodology, but in a way :P Full title: Nothing About Us Without Us: Top 10 Research Priorities from Patients – A James Lind Alliance Project for Public and Patient Involvement (PPI) Background/Purpose: Patient and public involvement (PPI) is gaining increasing...
  3. ME/CFS Skeptic

    Suppose you have €5-10 million for ME/CFS research, what would you spend it on?

    Not that I have that much on my bank account, but I wondered what medium-to large scale studies would be most interesting in doing in ME/CFS research. Many have discussed this on this forum but it is often scattered among different threads and discussions. The James Lind Society helped to set...
  4. Andy

    Research Recommendations Following the Discovery of Pain Sensitising IgG Autoantibodies in Fibromyalgia Syndrome, 2021, Goebel et al

    Abstract Background Fibromyalgia syndrome (FMS) is the most common chronic widespread pain condition in rheumatology. Until recently, no clear pathophysiological mechanism for fibromyalgia had been established, resulting in management challenges. Recent research has indicated that serum IgGs...
  5. T

    USA:NANDSC Working Group for ME/CFS Research report, September 2019

    From: NIH MECFS Information List Sent: Wednesday 4 September 2019 15:36 Subject: News from NIH: Report of the NANDSC Working Group for ME/CFS Research now online The report of the NANDSC Working Group for ME/CFS Research is now online...
  6. Andy

    ME Association: Website survey: What do you think should be our research funding priorities for 2018?

    To go straight to the survey, it's on the MEA home page, http://www.meassociation.org.uk/, towards the bottom of the page, middle column. Options are: UK M.E. Biobank Role of infection Immune system dysfunction Mitochondrial function Neurological involvement e.g. inflammation, PoTS, and...
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