questionnaires

Abstract Debilitating symptoms of fatigue and accompanying “brain fog” are observed among patients with various chronic health conditions. Unfortunately, an efficient and psychometrically sound instrument to assess these co-occurring symptoms is unavailable. Here, we report the development and...

Many questionnaires used to measure depression ask about general symptoms such as fatigue, sleep, appetite, concentration etc. People with a chronic illness such as ME/CFS already have those symptoms and are thus more likely to score high on these depression questionnaires, even if they are not...

Detecting Orthostatic Intolerance in Long COVID in a Clinic Setting Isaac, Robert Oliver; Corrado, Joanna; Sivan, Manoj Introduction: A likely mechanism of Long COVID (LC) is dysautonomia, manifesting as orthostatic intolerance (OI). In our LC service, all patients underwent a National...

BACKGROUND: Existing instruments often are inappropriate to measure the effects of post-exertional malaise (PEM) and post-exertional symptom exacerbation (PESE) on activities of daily living (ADLs). A validated questionnaire to measure self-reported ability with ADLs would advance research and...

We have other threads where we take a serious look at some questionnaires and their misleading results when used in ME/CFS research. The classic case of this is the Chalder Fatigue Questionnaire, yet we still see it used even by otherwise respected ME/CFS clinicians/researchers. I participated...

https://www.tomwademd.net/chart-of-questionnaires-and-tools-that-may-be-useful-for-assessing-me-cfs-seid-symptoms/ contact details https://www.tomwademd.net/contact/

[Anxiety in patients with postural tachycardia syndrome (POTS)] Article in German C Wagner, S Isenmann, H Ringendahl, C-A Haensch Background: The postural tachycardia syndrome (POTS) is a condition of the autonomic nervous system with symptoms of orthostatic intolerance. In POTS patients...

I am raising this topic for discussion because I think there are fundamental problems with the design and use of questionnaires in ME/CFS and other medical research. Questions for consideration: 1. Should questionnaires ever be used to draw conclusions about psychological factors affecting...

This seems to be an important article, hits many points and arguments that have been made repeatedly on this forum, namely that there is a problem with the content validity of questionnaires that measure catastrophizing. Here the Belgian authors looked at the validity of six pain...

Full paper (PDF file), https://link.springer.com/epdf/10.1007/s10286-018-00586-5?shared_access_token=STPXS4PtJZOInVSXh8x-Mfe4RwlQNchNByi7wbcMAY660rig95e8st82z-CMxT4KiCk81BpD7DOoNq3KMVlYwM6FCVf_FXKtfFM1z-YvJJbjMgP9QCLqADOEFlJpB88Elu-TN36S3zHCJJbtNRbx7FEiObmkUmlXDKOql6z1yPE%3D also paywalled at...