questionnaire

Establishing Clinically Relevant Severity Levels for the Central Sensitization Inventory OBJECTIVES The aim of this study was to create and validate severity levels for the central sensitization inventory (CSI), a valid and reliable patient-reported outcome instrument designed to identify...

Rethinking measurement of health outcomes in Long COVID: complexities, challenges and considerations The reality of Long COVID emerged soon after the beginning of the COVID-19 pandemic. More than five years later, thousands of articles have been published with multiple case definitions...

Construct validity of self-reported and interview-guided administration methods of the Danish version of the post-COVID−19 functional Status scale INTRODUCTION The Post-COVID-19 Functional Status (PCFS) scale was quickly adopted into COVID-19 research and clinical practice worldwide to monitor...

https://xcancel.com/robwust/status/1991503273484841039?s=12 Rob Wüst @RobWust ME/CFS & Long COVID patients: we need your help! We’re validating a new tool to measure post-exertional malaise (PEM). Current questionnaires don’t capture its severity or impact. Your input changes that! English...

Development and content validity of the Clinal Needs Assessment for Myalgic Encephalomyelitis (CNAME) Sarah F Tyson, Russell Fleming, Keith Geraghty, Peter Gladwell doi: https://doi.org/10.1101/2025.10.27.25338891 Abstract Purpose: To co-produce the Clinical Needs Assessment for Myalgic...

Psychometric evaluation of the PROMIS® physical function short form 12a for use by adults with myalgic encephalomyelitis/chronic fatigue syndrome BACKGROUND Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating, long-term illness that significantly impairs physical...

I thought it would be helpful to post a link to the DePaul University web page with their symptom questionnaires: https://csh.depaul.edu/about/centers-and-institutes/ccr/myalgic-encephalomyelitis-cfs/Pages/measures.aspx

Large-scale psychometric assessment and validation of the Modified COVID-19 Yorkshire Rehabilitation Scale C19-YRSm patient-reported outcome measure for Long COVID or Post-COVID syndrome Mike Horton; Adam Smith; Stephen Halpin; Ruairidh Milne; Darren Winch; Clare Rayner; Roman Rocha Lawrence...

The psychological and physiological effects of a virtual reality-based treatment program in female patients with fibromyalgia syndrome: A randomized controlled trial. Sari et al, 2025 Abstract The study aims to evaluate the effects of virtual reality (VR) programs on disease activity, central...

Abstract Debilitating symptoms of fatigue and accompanying “brain fog” are observed among patients with various chronic health conditions. Unfortunately, an efficient and psychometrically sound instrument to assess these co-occurring symptoms is unavailable. Here, we report the development and...

Study Overview Brief Summary Psychological distress (anxiety and depression) is common in and experienced differently by people living with long-term health conditions (LTCs). Being able to measure whether psychological distress is related to living with a LTC would allow researchers and...

Now published - link here Preprint Pediatric and Adult Patients with ME/CFS following COVID-19: A Structured Approach to Diagnosis Using the Munich Berlin Symptom Questionnaire MBSQ Laura C. Peo; Katharina Wiehler; Johannes Paulick; Katrin Gerrer; Ariane Leone; Anja Viereck; Matthias Haegele...

Many questionnaires used to measure depression ask about general symptoms such as fatigue, sleep, appetite, concentration etc. People with a chronic illness such as ME/CFS already have those symptoms and are thus more likely to score high on these depression questionnaires, even if they are not...

Detecting Orthostatic Intolerance in Long COVID in a Clinic Setting Isaac, Robert Oliver; Corrado, Joanna; Sivan, Manoj Introduction: A likely mechanism of Long COVID (LC) is dysautonomia, manifesting as orthostatic intolerance (OI). In our LC service, all patients underwent a National...

BACKGROUND: Existing instruments often are inappropriate to measure the effects of post-exertional malaise (PEM) and post-exertional symptom exacerbation (PESE) on activities of daily living (ADLs). A validated questionnaire to measure self-reported ability with ADLs would advance research and...

NEO-FFI (Five factor inventory, Borkenau and Ostendorf1993; Costa and McCrae1992). The following study assessed the stability of the Big Five personalty traits, by asking people to watch a 10 minute emotion-inducing film, and then think of happy or sad times while listening to an appropriate...

We have other threads where we take a serious look at some questionnaires and their misleading results when used in ME/CFS research. The classic case of this is the Chalder Fatigue Questionnaire, yet we still see it used even by otherwise respected ME/CFS clinicians/researchers. I participated...

https://www.tomwademd.net/chart-of-questionnaires-and-tools-that-may-be-useful-for-assessing-me-cfs-seid-symptoms/ contact details https://www.tomwademd.net/contact/

[Anxiety in patients with postural tachycardia syndrome (POTS)] Article in German C Wagner, S Isenmann, H Ringendahl, C-A Haensch Background: The postural tachycardia syndrome (POTS) is a condition of the autonomic nervous system with symptoms of orthostatic intolerance. In POTS patients...

Abstract Objective To describe the development and validation of a novel patient reported outcome measure for symptom burden from long covid, the symptom burden questionnaire for long covid (SBQ-LC). Design Multiphase, prospective mixed methods study. Setting Remote data collection and social...