questionnaire

The psychological and physiological effects of a virtual reality-based treatment program in female patients with fibromyalgia syndrome: A randomized controlled trial. Sari et al, 2025 Abstract The study aims to evaluate the effects of virtual reality (VR) programs on disease activity, central...

Study Overview Brief Summary Psychological distress (anxiety and depression) is common in and experienced differently by people living with long-term health conditions (LTCs). Being able to measure whether psychological distress is related to living with a LTC would allow researchers and...

Now published - link here Preprint Pediatric and Adult Patients with ME/CFS following COVID-19: A Structured Approach to Diagnosis Using the Munich Berlin Symptom Questionnaire MBSQ Laura C. Peo; Katharina Wiehler; Johannes Paulick; Katrin Gerrer; Ariane Leone; Anja Viereck; Matthias Haegele...

NEO-FFI (Five factor inventory, Borkenau and Ostendorf1993; Costa and McCrae1992). The following study assessed the stability of the Big Five personalty traits, by asking people to watch a 10 minute emotion-inducing film, and then think of happy or sad times while listening to an appropriate...

https://www.tomwademd.net/chart-of-questionnaires-and-tools-that-may-be-useful-for-assessing-me-cfs-seid-symptoms/ contact details https://www.tomwademd.net/contact/

Abstract Objective To describe the development and validation of a novel patient reported outcome measure for symptom burden from long covid, the symptom burden questionnaire for long covid (SBQ-LC). Design Multiphase, prospective mixed methods study. Setting Remote data collection and social...

Posts have been copied from this thread about a study that used the MFI. The intro to the linked MFI questionnaire says Does anyone know what validation study they refer to? Because, applied to ME, some of the MFI questions are extremely open to different interpretations. Not to mention...

Now published. https://www.s4me.info/threads/assessing-functional-capacity-in-me-cfs-a-patient-informed-questionnaire-funcap-2024-sommerfelt-et-al.35464/page-3#post-538060 The discussion thread before the preprint was published and the preprint thread have been merged. Discussion of the...

Abstract Central Sensitization (CS) has been proposed as a common pathophysiological mechanism to explain related syndromes for which no specific organic cause can be found. The term Central Sensitivity Syndrome (CSS) has been proposed to describe these poorly understood disorders related to...

https://link.springer.com/article/10.1186/s12991-020-00311-5 Primary research Open Access Published: 09 October 2020 Norwegian reference data on the Fatigue Questionnaire and the Patient Health Questionnaire-9 and their interrelationship Alv A. Dahl1,2* , Kjersti Støen Grotmol3, Marianne...

I thought that this was of some interest as it has Wessely seeming to be unusually open about the limitations of questionnaires for assessing symptoms/disorders. Though this time that's seemingly partly because it goes against the 'work is good for you' creed used by the UK government (Waddell &...

I am a bit skeptical about this. https://publichealth.berkeley.edu/news-media/research-highlights/new-screening-tool-may-predict-chronic-pain-before-it-starts/

I’m after some information about scales which measure severity of disease in ME/CFS, in terms of functional impairment (mild vs severe). There seem to be several which measure symptom severity and, whilst there will likely be a correlation between symptom and disease severity, they’re not the...

Elbers, R.G., Rietberg, M.B., van Wegen, E.E.H. et al. (2012), Self-report fatigue questionnaires in multiple sclerosis, Parkinson’s disease and stroke: a systematic review of measurement properties, Qual Life Res (2012) 21: 925. https://doi.org/10.1007/s11136-011-0009-2 Abstract: Chalder...

New study on PEM by the research team of Leonard Jason. I'm sure many on this forum will have filled in the online questionnaire:

Open access at https://www.frontiersin.org/articles/10.3389/fped.2018.00330/full

http://journals.sagepub.com/doi/abs/10.1177/1359105318805819?journalCode=hpqa

https://uhdspace.uhasselt.be/dspace/handle/1942/26531

Does anyone have this questionnaire? I'm trying but failing to find it.

All, As some of you know i've been trying to identify whether there are conditions other than Infections such as EBV that may be setting the stage for ME/CFS or co-exist with ME/CFS. Machine Learning suggests that Liver-related conditions may be of particular interest. I created a...