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  1. Andy
    Thread

    Evaluating the ability of patient reported outcome measures to represent the functional limitation of people living with ME/CFS, 2023, Jones, Gladwell

    Aim To identify activities which people with Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) report are impacted by their condition,...
    Thread by: Andy, May 9, 2023, 10 replies, in forum: ME/CFS research
  2. Andy
    Thread

    The modified COVID-19 Yorkshire Rehabilitation Scale (C19-YRSm) patient-reported outcome measure for Long Covid or Post-COVID-19 syndrome, 2022, Sivan

    Abstract Background The C19-YRS is the literature's first condition-specific, validated scale for patient assessment and monitoring in...
    Thread by: Andy, May 24, 2022, 6 replies, in forum: Long Covid research
  3. Andy
    Thread

    In progress: Measuring Health in Children with CFS/ME: Refinement, application and evaluation of new PROM (PEACH) in routine practice, Crawley et al

    Funded study in progress. Abstract: Background: Paediatric Chronic Fatigue Syndrome or Myalgic Encaphalistis (CFS/ME) is disabling and...
    Thread by: Andy, Jun 10, 2021, 16 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
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