prom

Patient-reported outcome measures for post-COVID-19 condition: a systematic review of instruments and measurement properties Ann-Kristin Baalmann; Christine Blome; Nina Stoletzki; Theresa Donhauser; Christian Apfelbacher; Katharina Piontek OBJECTIVES Post-COVID-19 condition (PCC), also referred...

Assessing severity of illness and outcomes of treatment in children with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME): a systematic review of patient-reported outcome measures (PROMs) K L Haywood 1, S M Collin, E Crawley Abstract Chronic Fatigue Syndrome or Myalgic...

Now published: link here Preprint Background: Post COVID-19 syndrome or Long Covid (LC) is a novel fluctuating condition with a protracted course in some patients. Specialist LC services have been operational in the UK since 2020 and deal with a high caseload of patients. Aims: To evaluate...

Abstract Background Individuals may experience a range of symptoms after the clearance of the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infection. This condition is termed long COVID (LC) or Post-COVID-19 condition (PCC). Despite the appreciable number of symptoms documented...

This thread has been split from UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023 ********* Just stumbled across this: Obtaining Patient Priorities in a Multiple Sclerosis Comprehensive Care Center: Beyond Patient-Reported Outcomes -...

Impact of long COVID on health-related quality-of-life: an OpenSAFELY population cohort study using patient-reported outcome measures OpenPROMPT Oliver Carlile and 105 others BACKGROUND Long COVID is a major problem affecting patient health, the health service, and the workforce. To optimise...

Abstract Background: Patient-reported outcome measures (PROMs) are often used in clinical research, but little is known about their performance as longitudinal outcomes. Methods: We used data from ASCEND, a large SPMS trial (n = 889), to investigate changes on the Short Form Health Survey 36...

Feasibility characteristics of wrist-worn fitness trackers in health status monitoring for post-COVID patients in remote and rural areas Madeleine Wiebe; Marnie Mackay; Ragur Krishnan; Julie Tian; Jake Larsson; Setayesh Modanloo; Christiane Job Mcintosh; Melissa Sztym; Gail Elton-Smith; Alyssa...

Myalgic Encephalomyelitis—Chronic Fatigue Syndrome Common Data Element item content analysis Mary D. Slavin; Hannah M. Bailey; Emily J. Hickey; Ananya Vasudevan; Aileen Ledingham; Linda Tannenbaum; Lucinda Bateman; David L. Kaufman; Daniel L. Peterson; Ilene S. Ruhoy; David M. Systrom; Donna...

Aim To identify activities which people with Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) report are impacted by their condition, and evaluate the ability of measures of function used by National Health Service (NHS) ME/CFS Services to represent these experiences. Method 122...

Abstract Background The C19-YRS is the literature's first condition-specific, validated scale for patient assessment and monitoring in Post-COVID-19 syndrome (PCS). The 22-item scale’s subscales (scores) are: symptom severity (0-100), functional disability (0-50), additional symptoms (0-60)...

Funded study in progress. Abstract: Background: Paediatric Chronic Fatigue Syndrome or Myalgic Encaphalistis (CFS/ME) is disabling and relatively common (1-2% of teenagers). We need to improve treatment but need a well developed Patient Reported Outcome Measure (PROM) to do this. Clinical...