post exertional crash

  1. Trish

    PEM: A thread for sharing your experience of post-exertional malaise

    Do you get delayed PEM that makes your ME/CFS more severe for a day or more, up to and including permanently? I have started this thread to focus entirely on each poster describing your own experience of PEM. My aim is that we avoid theorising about the underlying biology - keep the focus on...
  2. rvallee

    USA: The RECOVER Initiative - Long Covid research

    New thread created by collecting posts from a number of other threads If someone's in a listening mood, there's no transcript. 30 minutes with the NIH Recover initiative lead: Direct link: https://www.nejm.org/action/showMediaPlayer?doi=10.1056/NEJMdo006435&aid=10.1056/NEJMe2201619&area=.
    • rvallee
    • Thread
    • exercise long covid long-covid me/cfs nih pem pese post exertional crash post exertional malaise recover initiative research tonix pharmaceuticals
    • Replies: 386
    • Forum: Long Covid news
  3. Trish

    MEA summary review: Assessing PEM (Post-exertional malaise) by Charlotte Stephens March 2019

    https://www.meassociation.org.uk/wp-content/uploads/MEA-Research-Review-Assessing-PEM-in-MECFS-25.03.19.pdf 14 page pdf document that covers definitions of PEM, clinical assessment and management including heart rate monitoring, and the latest research.
  4. Sue Klaus

    It's not malaise!!!

    It's time to remove the word malaise from post exertional problems in mecfs. Malaise doesn't come close at all to describing what that actually is. It's not malaise. It's a full-on mental and physical crash. It's like a living death. There is no way malaise should be used to describe this.
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