pheby

  1. Hutan

    Considerations in establishing a post-mortem brain and tissue bank for the study of ME/CFS: a proposed protocol, 2014, Nacul et al

    https://bmcresnotes.biomedcentral.com/articles/10.1186/1756-0500-7-370 Open access Luis Nacul, Dominic G O’Donovan, Eliana M Lacerda, Djordje Gveric, Kirstin Goldring, Alison Hall, Erinna Bowman & Derek Pheby Abstract Background Our aim, having previously investigated through a qualitative...
    • Hutan
    • Thread
    • biobank brain brain donation nacul pheby post-mortem
    • Replies: 8
    • Forum: ME/CFS research
  2. Hutan

    Exploring the feasibility of establishing a disease-specific post-mortem tissue bank in the UK: a case study in ME/CFS, 2010, Lacerda et al

    An old thread, but the idea of a post-mortem biobank is often discussed on the forum, and this study was linked in one such discussion. https://jcp.bmj.com/content/63/11/1032 Not open-access Sci-hub link: https://sci-hub.wf/10.1136/jcp.2010.082032 Abstract Background Myalgic...
    • Hutan
    • Thread
    • biobank brain brain donation charles shepherd lacerda nacul peter spencer pheby post-mortem
    • Replies: 1
    • Forum: ME/CFS research
  3. Sly Saint

    An Audit of UK Hospital Doctors’ Knowledge and Experience of Myalgic Encephalomyelitis, 2021, Hng, Geraghty & Pheby

    Abstract Background and Objectives: There is some evidence that knowledge and understanding of ME among doctors is limited. Consequently, an audit study was carried out on a group of hospital doctors attending a training event to establish how much they knew about ME and their attitudes towards...
    • Sly Saint
    • Thread
    • doctors education geraghty hng hospital keith geraghty pheby united kingdom
    • Replies: 1
    • Forum: General ME/CFS news
  4. Sly Saint

    The Role of Prevention in Reducing the Economic Impact of ME/CFS in Europe: Report from Socioeconomics Working Group of [EUROMENE], 2021, Pheby et al

    The Role of Prevention in Reducing the Economic Impact of ME/CFS in Europe: A Report from the Socioeconomics Working Group of the European Network on ME/CFS (EUROMENE) Derek F. H. Pheby 1,*, Diana Araja 2, Uldis Berkis 3, Elenka Brenna 4, John Cullinan 5, Jean‐Dominique de Korwin 6,7, Lara...
  5. John Mac

    A Literature Review of GP Knowledge and Understanding of ME/CFS: A Report from the Socioeconomics Working Group of EUROMENE, 2020, Pheby et al

    Full title: A Literature Review of GP Knowledge and Understanding of ME/CFS: A Report from the Socioeconomics Working Group of the European Network on ME/CFS (EUROMENE) https://www.preprints.org/manuscript/202011.0735/v1
  6. John Mac

    ME/CFS European Comparison Survey - SmartSurvey. Professor Derek Pheby 2020

    https://www.smartsurvey.co.uk/s/GX4HMU/ I took the survey and it did only take 10 minutes. Wanted to know your symptoms, medications and treatments. https://me-pedia.org/wiki/Derek_Pheby
  7. John Mac

    EUROPEAN ME NETWORK (EUROMENE) Expert Consensus on the Diagnosis, Service Provision and Care of People with ME/CFS in Europe, 2020, Nacul et al.

    Not sure which forum this should go in. How to cite: Nacul, L.; Authier, J.; Scheibenbogen, C.; Lorusso, L.; Helland, I.; Alegre Martin, J.; Sirbu, C.A.; Mengshoel, A.M.; Polo, O.; Behrends, U.; Nielsen, H.; Grabowski, P.; Sekulic, S.; Sepulveda., N.; Esteves Lopez, F.; Zalewsk, P.; Pheby, D...
    • John Mac
    • Thread
    • 2020 bergquist euromene europe guidelines lacerda me/cfs nacul pheby scheibenbogen
    • Replies: 54
    • Forum: General ME/CFS news
  8. Sly Saint

    The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of (ME/CFS): A Report from Euromene Apr 2020

    The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE) Authors Derek F.H. Pheby 1,* , Diana Araja 2, Uldis Berkis 3, Elenka Brenna 4 , John Cullinan 5...
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