patient led research

  1. ahimsa

    Severe people may hold answers to Long COVID. They must be included in research. (The Sick Times)

    Severe people may hold answers to Long COVID. They must be included in research. After giving several examples of research projects that have included more severe patients, they made these comments:
    • ahimsa
    • Thread
    • long covid me/cfs patient led research research severe
    • Replies: 6
    • Forum: Long Covid news
  2. SNT Gatchaman

    NYT - A Great Idea for People With a Terrible Disease: Let’s Find a Cure Ourselves

    A Great Idea for People With a Terrible Disease: Let’s Find a Cure Ourselves Zeynep Tufekci https://archive.md/Y2Qdz
  3. Kalliope

    Long COVID: major findings, mechanisms and recommendations, 2023, Davis, Topol et al

    Nature reviews microbiology Long COVID: major findings, mechanisms and recommendations Abstract Long COVID is an often debilitating illness that occurs in at least 10% of severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infections. More than 200 symptoms have been identified with...
    • Kalliope
    • Thread
    • audio citizen science dysautonomia dysfunctional mitochondria eric topol hannah davis long covid long covid research me/cfs patient led research transcript
    • Replies: 31
    • Forum: Long Covid research
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