patient and public involvement

  1. SNT Gatchaman

    Methodologic and Policy Efforts to Improve a National Long COVID Study, 2024, Jason, Leonard A.

    Methodologic and Policy Efforts to Improve a National Long COVID Study Jason, Leonard A. Researching COVID to Enhance Recovery (RECOVER) is a National Institutes of Health initiative to improve our understanding of recovery after SARS-CoV-2 infection and to prevent and treat Long COVID. For...
  2. Yann04

    Research Design in Chronic Pain

    Found this thread by Sabrina Porter on bluesky and though worth sharing. For rest see: https://bsky.app/profile/sabrinapoirier.bsky.social/post/3lcxcph4iec2l Thought she made some really good points. Except for the unproven mast cell and brain inflammation stuff at the end.
  3. Yann04

    Epistemic injustice, healthcare disparities and the missing pipeline, 2024, Hunt and Blease

    Epistemic injustice, healthcare disparities and the missing pipeline: reflections on the exclusion of disabled scholars from health research. Abstract: “People with disabilities are subject to multiple forms of health-related and wider social disparities; carefully focused research is required...
  4. Hutan

    Making a 'Charter for Ethical ME/CFS Research'

    Copying from a post I made elsewhere, this idea arose in forum committee discussions about researchers' responsibilities to act ethically. ..What if we and/or patient organisations developed a charter for all ME/CFS (and ME/CFS-like LC) researchers or research studies? There could be a...
  5. C

    The lived experience of depression, 2023, Fusar-Poli et al

    World Psychiatry Journal The lived experience of depression: a bottom-up review co-written by experts by experience and academics Paolo Fusar-Poli, Andrés Estradé, Giovanni Stanghellini, Cecilia Maria Esposito, René Rosfort, Milena Mancini, Peter Norman, Julieann Cullen, Miracle Adesina, Gema...
  6. Sly Saint

    User involvement in a Cochrane systematic review: using structured methods to enhance the clinical relevance, usefulness ..., 2015, Pollock et al.

    User involvement in a Cochrane systematic review: using structured methods to enhance the clinical relevance, usefulness and usability of a systematic review update 2015 Authors Abstract Background This paper describes the structured methods used to involve patients, carers and health...
  7. Andy

    The Promise of Patient-Led Research Integration into Clinical Registries and Research

    Project Summary Background: While patients are increasingly engaged in clinical research and clinical registries in an advisory capacity, collaboration and patient leadership in clinical effectiveness research remains limited. Newer patient-led participatory outcomes research for Long COVID-19...
  8. ME/CFS Skeptic

    BMJ opinion. Virginia Minogue and Bill Wells: Patients and the public are essential to reducing research waste

    https://blogs.bmj.com/bmj/2019/08/09/virginia-minogue-and-bill-wells-patients-and-the-public-are-essential-to-reducing-research-waste/?utm_source=twitter&utm_medium=hootsuite&utm_term=&utm_content=SME&utm_campaign=editors
  9. Andy

    ‘What can I do that will most help researchers?’ A different approach to training the public at the start of their involvement in research,2019,Staley

    https://researchinvolvement.biomedcentral.com/articles/10.1186/s40900-019-0144-4
Back
Top Bottom