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Special Report - Online activists are silencing us, scientists say Reuters March 2019

Reuters: LONDON (Reuters) - The emails, tweets and blog posts in the “abuse” folder that Michael Sharpe keeps on his computer continue to pile up....

Thread by: Sly Saint, Mar 13, 2019, 789 replies, in forum: PsychoSocial ME/CFS News
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2014 Impact case study - Queen Mary University of London (QMUL) - CFS

Didn't know where to post this or if it has been posted before; 1. Summary of the impact Chronic fatigue syndrome (CFS) is a disorder of...

Thread by: Sly Saint, Dec 5, 2018, 21 replies, in forum: PsychoSocial ME/CFS News
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David Tuller: Trial by Error: Open Letter to The Lancet, version 3.0

Two months ago, Professor Racaniello sent Lancet editor Richard Horton an open letter about the indisputable methodological and ethical failings...

Thread by: Indigophoton, Aug 13, 2018, 33 replies, in forum: General ME/CFS News
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David Tuller: Trial By Error: My Letter to Parliament’s Science and Technology Committee

Earlier today, I e-mailed the following letter to the members of the House of Commons Science and Technology Committee, which has been...

Thread by: Indigophoton, Jul 11, 2018, 19 replies, in forum: General ME/CFS News
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David Tuller: Trial By Error: Yet Another Appeal to The Lancet, With More On Board

Last month, Professor Racaniello sent Lancet editor Richard Horton an open letter about the PACE trial signed by 94 scientists, clinicians,...

Thread by: Indigophoton, Jul 10, 2018, 6 replies, in forum: General ME/CFS News
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PACE: Reports from trial participants (GET, CBT)

This thread has been started as a place where reports from PACE trial participants can be recorded.

Thread by: Hutan, Jun 25, 2018, 75 replies, in forum: PsychoSocial ME/CFS Research
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BMJ Peer review of Wilshire et al re-analysis of PACE paper

Split from the twitter thread. Some discussion of the peer review of the PACE re-analysis article submitted to the BMJ starts from post #1745 of...

Thread by: Esther12, Jun 24, 2018, 33 replies, in forum: PsychoSocial ME/CFS Research
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The Canary: Esther McVey and her department are now totally out of control

Another article by Steve Topple using ME and PACE as illustrative of current government policy, Last year, the UN accused the Department for Work...

Thread by: Indigophoton, Jun 19, 2018, 15 replies, in forum: Health News and Research unrelated to ME/CFS
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Video: The PACE trial: a short explanation, Graham McPhee

A new video by @Graham, the first in a series of three, explaining the PACE trial (about 8 mins), [MEDIA]

Thread by: Indigophoton, Jun 19, 2018, 125 replies, in forum: BioMedical ME/CFS News
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youtuber: Have you been misled...? // What is PACE? // Medical Scandal

Just saw this had picked up 4k views in the first hour, so thought it was worth mentioning: [MEDIA] Looks like the creator is mainly a fashion...

Thread by: Esther12, May 7, 2018, 16 replies, in forum: General ME/CFS News
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Blog: PACE trial: Whatever happened to actigraphy?

A new blog post by @Lucibee, In my first blog about the PACE trial, I discussed the lack of objective measures, and the bothersome issue of not...

Thread by: Indigophoton, May 9, 2018, 3 replies, in forum: General ME/CFS News
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A series of PACE funding FoI requests

Hello, First post, here goes... I recently placed a number of Freedom of Information requests with the funders of the PACE trial, named on the...

Thread by: AR68, Apr 28, 2018, 60 replies, in forum: General ME/CFS News
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The “scandal” of the PACE trial for CFS/ME, BLB Solicitors

A short piece by a firm of personal injury solicitors presumably seeing the possibility of legal action where patients have been harmed: In 2011,...

Thread by: Indigophoton, Apr 25, 2018, 19 replies, in forum: General ME/CFS News
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Michael Sharpe skewered by @JohntheJack on Twitter

[MEDIA] [MEDIA]

Thread by: Indigophoton, Apr 9, 2018, 2,267 replies, in forum: General ME/CFS News
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MP Theresa Villiers asks for NHS for more PACE!

Theresa Villiers MP asked the Secretary of State for Health and Social Care if the NHS could roll out more 'PACE treatment' for people with...

Thread by: adambeyoncelowe, Mar 14, 2018, 9 replies, in forum: General ME/CFS News
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Cochrane review and the PACE trial

In the debate on the PACE trial yesterday, the Cochrane review was again cited as validation of the PACE trial results ".........scientists as...

Thread by: Sly Saint, Feb 21, 2018, 61 replies, in forum: PsychoSocial ME/CFS Research
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Support and inform Scottish MP Carol Monaghan ahead of her debate on the PACE trial in Parliament, Tuesday 20th February 2018

We already have an extensive discussion thread on the subject here,...

Thread by: Andy, Feb 14, 2018, 49 replies, in forum: Advocacy Action Alerts
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Lancet Infectious Diseases: Editorial, "A proper place for retraction", 2017, mentions PACE in passing

My bolding. The Committee on Publication Ethics (of which The Lancet Infectious Diseases is a member) states that the purpose of retraction is to...

Thread by: Andy, Jan 29, 2018, 55 replies, in forum: General ME/CFS News
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Centre for Welfare Reform: "In the Expectation of Recovery"

This was from last year at some point, but it was recently mentioned again on Facebook and we didn't seem to have a thread for it here (although...

Thread by: Andy, Jan 7, 2018, 1 replies, in forum: Health News and Research unrelated to ME/CFS
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Nature: A reboot for chronic fatigue syndrome research

by Amy Maxmen After decades of pleading, people with the condition have finally caught the attention of mainstream science — and dozens of...

Thread by: Cheshire, Jan 3, 2018, 109 replies, in forum: General ME/CFS News

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