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outcome measures

Thread
(…) overestimation of effects in randomized trials that fail to optimize randomization and blind patients and outcome assessors, Wang, Guyatt+, 2023

Compelling evidence from meta-epidemiological studies demonstrates overestimation of effects in randomized trials that fail to optimize...

Thread by: cassava7, Nov 9, 2023, 7 replies, in forum: Research methodology news and research
Thread
Core patient-reported outcome measures for chronic pain patients treated with spinal cord stimulation or dorsal root ganglia stimulation, 2023, Huygen

Abstract Background Neurostimulation is a highly effective therapy for the treatment of chronic Intractable pain, however, due to the complexity...

Thread by: Sly Saint, Jul 23, 2023, 0 replies, in forum: Research methodology news and research
Thread
Thesis System and methods to determine ME/CFS & Long Covid disease severity using wearable sensor & survey data, 2023, Sun

Free fulltext:...

Thread by: Tom Kindlon, Jul 11, 2023, 21 replies, in forum: ME/CFS research
Thread
Clinical outcome assessment in clinical trials of chronic pain treatments, 2021, Turk et al

Patel KV, Amtmann D, Jensen MP, Smith SM, Veasley C, Turk DC. Clinical outcome assessment in clinical trials of chronic pain treatments. Pain Rep....

Thread by: MSEsperanza, Nov 9, 2022, 1 replies, in forum: Research methodology news and research
Thread
American College of Rheumatology. Preliminary definition of improvement in rheumatoid arthritis, 1995, Felson et al.

American College of Rheumatology. Preliminary definition of improvement in rheumatoid arthritis. Felson DT, Anderson JJ, Boers M, Bombardier C,...

Thread by: MSEsperanza, Apr 8, 2022, 16 replies, in forum: Other health news and research
Thread
Core Outcome Set for Research and Clinical Practice in Post COVID-19 Condition (Long COVID): ... ‘PC-COS’, 2022, Munblit et al

Full title: Core Outcome Set for Research and Clinical Practice in Post COVID-19 Condition (Long COVID): An International Delphi Consensus Study...

Thread by: Andy, Feb 10, 2022, 8 replies, in forum: Long Covid research
Thread
GAS (Goal Attainment Scaling in Rehabilitation), GAS-light, and gaslighting.

This post has been copied and following posts moved from this thread: NICE pauses publication of updated ME/CFS guideline hours before publication...

Thread by: rvallee, Sep 1, 2021, 88 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
Thread
Clinical trial outcome measures of improvement and recovery in ME/CFS - which ones are useful? Discussion thread

Copied from this thread: Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda...

Thread by: MSEsperanza, Apr 6, 2021, 13 replies, in forum: Other research methodology topics
Thread
POMME Study: Paediatric Outcome Measure ME, 2020, Crawley et al

https://www.ruh.nhs.uk/patients/services/clinical_depts/paediatric_cfs_me/index.asp...

Thread by: Sly Saint, Mar 11, 2021, 10 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
Thread
Discernment of Mediator and Outcome Measurement in the PACE trial, Chalder,Goldsmith et al, 2021

preprint Abstract Background: When measuring latent traits, such as those used in psychology and psychiatry, it can be unclear whether the...

Thread by: Sly Saint, Jan 29, 2021, 11 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
Thread
Physical activity measures in patients with myalgic encephalomyelitis/chronic fatigue syndrome [...], 2020, Rowe et al

Pre-print, not peer-reviewed. Physical activity measures in patients with myalgic encephalomyelitis/chronic fatigue syndrome: correlations...

Thread by: cassava7, Apr 15, 2020, 12 replies, in forum: ME/CFS research
Thread
Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric CFS/ME - Crawley et al Jan 2020

Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric chronic fatigue syndrome/myalgic...

Thread by: Sly Saint, Jan 7, 2020, 8 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
Thread
Psychometric properties of the PROMIS® Fatigue Short Form 7a among adults with [ME/CFS], 2019, Yang et al

Purpose To evaluate the psychometric properties of the Patient-Reported Outcome Measurement Information System® Fatigue Short Form 7a (PROMIS...

Thread by: Andy, Sep 12, 2019, 22 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
Thread
Wessely and double-blinding

Posting this from Wessely in a 2009 interview, because it shows that he clearly understands the importance of double-blinding subjective outcome...

Thread by: Sean, Feb 26, 2019, 7 replies, in forum: Research methodology news and research
Thread
The use of monitoring devices such as actometers to measure outcomes in clinical trials. Discussion thread

This post was copied and subsequent posts either copied or moved from this thread: David Tuller: Trial By Error: So What's Happening with the...

Thread by: Sly Saint, Sep 18, 2018, 23 replies, in forum: ME/CFS research
Thread
New Crawley research? MOrPH-CFS

I don't remember seeing anything about this previously: MOrPH-CFS We know very little about the causes of CFS/ME, although it is sometimes...

Thread by: Esther12, Jan 6, 2018, 36 replies, in forum: General ME/CFS news
Thread
Post-exertional malaise as an outcome measure in any ME/CFS trials?

A researcher has asked me: does anyone know of any ME/CFS trials that have used a measure of post-exertional malaise as an outcome measure apart...

Thread by: Tom Kindlon, Dec 26, 2017, 10 replies, in forum: General ME/CFS news

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