ninds

Copied post News from NIH: NINDS is seeking feedback on ME/CFS Research Roadmap Priorities NINDS is seeking your input on the ME/CFS Research Roadmap priorities. The goal is to collect broad feedback from the public on the research priorities being developed by the Myalgic...

Post-COVID dysautonomias: what we know and mainly what we don’t know Goldstein, David S. Following on from the COVID-19 pandemic is another worldwide public health challenge that is referred to variously as long COVID, post-COVID syndrome or post-acute sequelae of SARS-CoV-2 infection (PASC)...

MEAction has an article reporting on their "Cards to Koroshetz" campaign. They asked folks to send holiday cards to Dr. Koroshetz, Director of NINDS (National Institute of Neurological Disorders and Stroke) at NIH, to tell their stories about living with ME...

Brian Vastag asked me to post this here as he isn’t on Science 4 ME. Hi - I'm nearing the end of week 2, visit 2 of the NIH study. Thought that I'd reiterate to the community that the study is still recruiting and still needs patients. To volunteer, contact patient coordinator Angelique Gavin...

From: NIH MECFS Information List Sent: Wednesday 4 September 2019 15:36 Subject: News from NIH: Report of the NANDSC Working Group for ME/CFS Research now online The report of the NANDSC Working Group for ME/CFS Research is now online...

https://solvecfs.org/nih-launches-new-working-group-dedicated-to-me-cfs/

Source: Neurology Vol 90, #15 Supplement Date: April 23, 2018 URL: http://n.neurology.org/content/90/15_Supplement/P2.016 [American Academy of Neurology 70th Annual Meeting, Los Angeles] A Common Language for Clinical Research Studies: The National Institute of Neurological Disorders and...