mepedia

Hi, I’m creating this thread because the Me-pedia primer for journalists is outdated. However, it is likely still being seen by many journalists: * The page gets hundreds of views per day * It is the first google search result for various searches related to journalism and reporting on ME * The...

Any chance someone could update the page?. https://me-pedia.org/wiki/Science_for_ME

I would like to send the following proposal to ME Action, as it is currently in the process of specifying its core values and principles. I’m inviting other ME/CFS advocates and members of ME/CFS community to co-sign the statement if they agree with the proposal. I prefer to make the statement...

Moderator note: This discussion has been moved from this thread: Concerns about craniocervical instability surgery in ME/CFS

Moderator note: This post was copied, and subsequent posts discussing it, have been moved from this thread: Biomedical articles on MEpedia - purposes and pitfalls Discussion of MEPedia policy on its science articles and what should be included continues on that thread. Anyone feeling up to...

Down since last night. :(

If anyone would like to add the following to the ME-pedia AfME pages: potted history: http://web.archive.org/web/20130917032932/http://www.actionforme.org.uk/Resources/Action%20for%20ME/Documents/get-informed/history-of-action-for-me.pdf merger with Westcare in 2002...

This is by far the most important page on MEpedia: https://www.me-pedia.org/wiki/Myalgic_encephalomyelitis While as always, I highly encourage direct contributions/edits, we should if nothing else get this page right. So I'm very happy to make edits on behalf of folks who really don't have the...

In conjunction with the master list of facts @JaimeS is discussing in this thread (https://www.s4me.info/threads/a-masterlist-of-me-facts-the-citations-that-support-them.5315/unread), I would love help improving MEpedia's epidemiology page...

Moderator note: This thread has been split off from the introductory MEpedia thread here. @JenB My reading of @JaimeS's 'objective truth' is pretty much the same as your 'accuracy'. The point seems to be that people should aim not to give a biased (subjective) view. So for the page on...

We have a bunch of facts we use both for advocacy and for scientific research that we cite often. I spend a good amount of time at #MEAction providing citations to other advocates, and I know that advocates spend hours... and hours... and hours searching for the right citation to support a fact...

Hi all! I'm working to improve the quality of information for patients with ME, fibro, EDS, POTS, mast cell activation disorder having surgery as well as crowdsourcing a set of best practices for hospitals. The former will eventually be packaged into handouts patients can give their surgeon...

Fibromyalgia Page on MEpedia

Hi all. I just wanted to let everyone here know about the new MEpedia Facebook group. I know one piece of feedback for sometime was that MEpedia should be more social. I'm hoping for those on Facebook, this can help! https://www.facebook.com/groups/218347055598647/ For those not on Facebook, I...

This is the new front page of MEpedia and the "What is ME" icon will take you to Portal: Myalgic Encephalomyelitis. Jen has been doing a lot of portal work and I think the new front page looks great.

ETA: I'm not part of the MEpedia team, I've just shared their Facebook post. Please contact them on Facebook if you think you can help. ETA2: I do have a contact email address for the MEpedia team but would prefer not to advertise it (for privacy reasons) - if you are interested in helping out...

Fibromyalgia - MEpedia MEpedia is a WIKI for ME and CFS